We’'re ensuring everyone has the specialist care and support they need –- the right help at the right time, wherever they live


We'’re working with world-class researchers and won'’t stop until we find treatments and cures for all our conditions


Join our campaign for access to Translarna, to keep boys with Duchenne muscular dystrophy on their feet for longer


  • Town and Gown 10k runners

    Be one of 4,000 runners

    Are you set to tackle our Oxford Town and Gown 10k?

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  • embryo

    Human embryos genetically changed

    The research sparked ethical concerns in the scientific community

    Read more »

  • Recently diagnosed peer support event London

    New peer support network for people with a recent diagnosis

    Peer support volunteers network announced

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Events calendar

  • 25

    London Bungee Jump

    25 April 2015

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  • 26

    Virgin Money London Marathon 2015

    26 April 2015

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  • 26

    Awaaz group meeting on accessing hospices

    26 April 2015

    Read more »

Near you

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