We’'re ensuring everyone has the specialist care and support they need –- the right help at the right time, wherever they live


We'’re working with world-class researchers and won'’t stop until we find treatments and cures for all our conditions


Join our campaign for access to Translarna, to keep boys with Duchenne muscular dystrophy on their feet for longer


  • Town and Gown 10k runners

    Be one of 4,000 runners

    Are you set to tackle our Oxford Town and Gown 10k?

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  • microphone

    Your exon skipping questions

    Please send us your questions via our forum

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  • Clinic image

    Neuromuscular care advisors numbers continue to rise

    44 care advisors supporting people across the UK

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  • Kirath Mann

    Latest on NICE assessment of Translarna

    Next steps and how to get involved

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Events calendar

  • 22

    Scotland Cross Party Group meeting

    22 April 2015

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  • 24

    North West Muscle Group meeting in Blackburn

    24 April 2015

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  • 25

    London Bungee Jump

    25 April 2015

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Near you

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