Anne’s Wish is a family fund set up by Rob Eddon and family to raise funds in memory of Anne, who sadly passed away suddenly on the 9th February 2016. The money raised will help to fund research into inclusion body myositis (IBM) in her memory as Anne herself had the condition.
Anne was diagnosed with IBM through consultations and tests under the supervision of Professor Sir Doug Turnbull at the RVI Newcastle. IBM effects the ability to swallow, arm and leg muscles weaken leading to the person with the condition falling over.
Rob Eddon heard about the about the work of Muscular Dystrophy UK, and was later introduced to Sara Wilcox, Senior Regional Development Manager.
“The information provided by Sara has ensured that as a family we are able to turn what has been a negative year so far into a positive future. This is why we decided create a fund in Anne’s name to raise money into IBM research.”
Rob and Anne’s love was spending time on their narrowboat, which they had to sell due to the progression of Anne’s condition, so Rob wants to continue their dream and is buying another narrowboat which will be named in a future naming ceremony and will also be prevalent to their fundraising and raising awareness of IBM. They are also hoping to get nominated for charity of the year at Aqueduct Marina, Cheshire whereby fund raising events are held throughout the year with proceeds going to Anne’s Wish.
So far Anne’s wish have held a “70’s night which raised £890 for IBM research and they have lots of other amazing activities planes such as a Coast to Coast bike ride, Screwball rally, and other themed fundraising nights.
A warm welcome to Anne’s Wish.