The Arshad family has set up Auzair’s Fast Track Research Fund, to raise funds for Muscular Dystrophy UK-funded research into Duchenne muscular dystrophy. Auzair, who is now at university, was diagnosed with Duchenne muscular dystrophy when he was four years old. His mum and dad, Parveen and Mohammed, along with Auzair’s older brothers Khurm and Usi, have set up the fund.
Despite Auzair’s regular visits to their GP, healthcare professionals did not share the family’s concerns over Auzair’s mobility. It was only when a nurse at Auzair’s school expressed concern that he may have a muscle-wasting condition that he was sent for tests. These tests confirmed that Auzair did in fact have the severe muscle-wasting condition, Duchenne muscular dystrophy.
Auzair’s brother, Khurm, said:
Muscular Dystrophy UK was involved from day one of Auzair’s diagnosis. The charity’s care advisor, Jan Smith, was imperative to guiding us through the first four or five years. Without her guidance, we would have been lost and many of our questions would have remained unanswered.
Auzair has lost all but a little mobility in his hands and is now a full-time wheelchair user. His physical and medical needs require round-the-clock assistance; however this does not stop Auzair leading an independent and full life. He is now studying at university, and aspires to work in London or New York and travel the world.
Auzair has an excellent quality of life because we, as a family, strive to give him the care that he requires. Aside from this, the only thing we can do is raise as much money as possible to fund groundbreaking research in the hope that one day they are able to develop a treatment to either stop or slow down the progression of Duchenne muscular dystrophy. We know that Auzair will only be able to fully realise and achieve his ambitions in life with the help of treatment.
Khurm and his family have been fundraising since 2010 and have now raised over £100,000, hosting and participating in various events.
Most recently, the family have been funding Dr Angela Russel’s research in Oxford, which is looking into possible treatments for Duchenne Muscular Dystrophy.
How you can help
Setting up a family fund like Auzair’s Fast Track Research Fund is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.