Carson was diagnosed with Duchenne muscular dystrophy just after he was born. He will be 8 years old in July 2015.
Carson’s mum Sabrina says, “We were devastated but determined to give him the best life possible and do everything we can to help fund research into treatments and hopefully one day, a cure”.
The family first got involved with Muscular Dystrophy UK when Carson was three years old. Through their involvement they got to know other families who had children with Duchenne muscular dystrophy and heard about their efforts to raise awareness and money to find a cure.
Sabrina says, “We wanted to do something positive and to involve our local community as much as possible. We became aware that Muscular Dystrophy UK was raising money to fund research and trials into possible treatments for Duchenne muscular dystrophy. We firmly believe that we are closer than ever to finding a cure so raising money and awareness of Carson’s condition gives us a positive outlook and we are full of hope for the future”.
Sabrina and dad David are starting to see the effects Duchenne muscular dystrophy is having on his body. Carson has been having steroid treatment for a few years but now uses a wheelchair more than ever as he gets tired very quickly and his mobility is becoming more limited.
Originally from Stockport, the family moved to North Wales in 2014 where Carson has started a new school and they now have a bungalow built to meet Carson’s future needs.
In 2014 Carson was also given the opportunity to be a mascot for Manchester City, where he accompanied his hero, goalkeeper Joe Hart, onto the football pitch. This lead to Carson being featured in a Muscular Dystrophy UK awareness raising campaign, which appeared in the Metro and Evening Standard newspaper.
In addition, Carson was also on hand to help local Waste management Company Ash Waste Limited with some publicity when they entered a team of runners into the Cheshire 10k run to raise funds. Carson was very pleased when they asked him to pay a visit to one of their depots to meet the staff – he even got to sit in the cab of one of the huge waste lorries!
As well supermarket collections, their next big fundraising event will be the charity’s Move a Mile for Muscles event during the summer, after they hosted a pilot event in 2014.
Sabrina says, “We are more determined than ever to raise as much money as possible enable this research to continue until all boys affected by Duchenne muscular dystrophy are cured. Having a Family Fund in Carson’s name gives us the opportunity to fundraise with a really personal focus”.
How you can help
Setting up a family fund like Carson’s Angels is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.