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Ed Dawson has Becker muscular dystrophy. His wife Michelle set up Fast Eddie’s Fund to raise awareness and funds for the Muscular Dystrophy Campaign’s Duchenne Research Breakthrough Fund. In September 2013, Michelle and her colleagues from Synergy Health climbed Mount Snowdon and raised £975 to support Fast Eddie’s Fund.

Michelle and Ed Dawson with their daughters Aaliyah and AimeeMichelle and Ed met in 1999 and quickly became inseparable. Michelle said: “From day one I knew he had a unique walk and after a month I got the confidence to ask what was wrong with his legs. He told me he had Becker muscular dystrophy, and to be honest I had no clue as to what that was.”

Michelle began researching the condition and arranged for her and Ed, and Ed’s brother, who also has Becker muscular dystrophy, to attend an information day where they learned more about the muscle-wasting condition and how to manage it.

Ed and Michelle got married in 2003 and in 2006 their first daughter, Aaliyah, was born followed in 2011 by their second daughter, Aimee. It was around this time that Ed’s condition started affecting him more. He fell easily and wouldn’t hold baby Aimee unless he was sitting down for fear he might suddenly fall over. Pushing the children’s pushchairs also became increasingly difficult for him.

Despite these challenges, Michelle remains strong: “I have learned how to ‘fight’ for my family. Ed’s condition isn’t going away, and he will be in a wheelchair in his 40s. My girls are carriers and will need tests later in life. But I wouldn’t change anything. I LOVE them unconditionally and will do all I can for their cause.”

How you can help:

Setting up a family fund like Fast Eddie’s Fund is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.

In this section: Get involved

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