Tracey and Jonathan Topham of Grantham have set up Finlay’s Fighting Fund to raise funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Finlay, who is now seven, was diagnosed with muscular dystrophy when he was two and a half years old. Twelve months later, following an MRI scan, a muscle biopsy and countless hospital visits, Finlay was finally diagnosed with the severe muscle-wasting condition Duchenne muscular dystrophy.
We were devastated and heartbroken on getting the news. We didn’t know what the future held because we didn’t know much about the condition.
Following Finlay’s diagnosis, further tests identified Tracey as a carrier of the faulty gene.
Finlay now attends a muscle clinic every six months at QMC Hospital in Nottingham, takes steroids to maintain his muscle strength and wears splints at night to keep his feet and ankles in the correct position.
The family receive practical and emotional support from their regional care advisor, Julie Cassell. The regional care advisors are here to offer advice and information, and support physical and emotional wellbeing for families affected by muscular dystrophy and related neuromuscular conditions.
The Tophams set up Finlay’s Fighting Fund to raise vital funds to support research work into effective treatments for Finlay and other boys affected by Duchenne muscular dystrophy. Kick-starting their fundraising by organising a Christmas Fair at Finlay’s school, the family have continued to fundraise by taking part in the Great North Run, the Clough Taylor People’s Run, and a series of other fundraising activities.
Sara Wilcox, Volunteer Fundraising Manager in the North East, Cumbria and Yorkshire said:
Tracey and Jonathan have already had an incredible fundraising journey, and setting up a Family Fund was a natural progression for them. I look forward to working with the Tophams, giving them the support they need to raise awareness and vital funds in their local community.
How you can help
- Support Finlay’s Fighting Fund by making an online donation.
Setting up a family fund like Finlay’s Fighting Fund is a great way to fundraise for Muscular Dystrophy UK and help us fight muscle-wasting conditions. Find out more about our family funds.