On the 18 July 2017 parents Kirsty and Nick received the shocking news that their 3 year old son, Owen, had Duchenne muscular dystrophy. Later the same day it was confirmed that their other son, George, aged just 9 months, had the same diagnosis.

Kirsty had raised concerns more than a year previously, when Owen hadn’t walked until he was 21 months old. However, having been assessed by a physiotherapist and discharged, Kirsty and Nick were reassured.

It later became clear that there was a big difference in Owen compared to his peers with regards to running, jumping, and climbing, and Kirsty asked to be referred back to physiotherapy. It was then that Owen was referred to a Paediatrician and blood tests were arranged which later confirmed that he had Duchenne muscular dystrophy. A follow up with a Neurologist and a simple blood test confirmed that his younger brother George was also affected.

Kirsty and Nick are completely devastated that both of their boys have been diagnosed with Duchenne muscular dystrophy. However, with the support of family and friends, they are determined to help make a difference for their sons and others with Duchenne.

Family Fund Project GO has been set up by Kirsty and Nick to help raise awareness and vital funds to support the work of Muscular Dystrophy UK with the Duchenne Research Breakthrough Fund.

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