Katy and Mike Doyle’s five-year-old son Clark was diagnosed with Duchenne muscular dystrophy in 2011, following concerns around Clark’s balance and walking speed.
We felt lost at times after Clark’s diagnosis but soon realised that we had access to reat support. Our regional care advisor and Muscular Dystrophy UK are the two main rocks that we knoware always there if we need them. They give us confidence and knowledge that if an issue arises we will get good support and advice.
Clark’s condition is now reviewed every few months by a physiotherapist and occupational therapist and he is likely to start steroid treatment in the next few months.
We knew we wanted to fundraise but didn’t know where to start as it seemed quite daunting. Muscular Dystrophy UK provided the support and guidance we needed to get started.
The family set up Super Clark’s Fund, named after Clark’s love of superheroes. Katy bravely took part in our ‘Make Today Count’ skydive in March, and the family have organised a race night and two fundraising weekends at a B&Q store in St Helen’s, where Katy works.
Funds raised through their family fund will be used to support the Duchenne Research Breakthrough Fund, which they got involved in following a launch event in the North West.
How you can help
Setting up a family fund like Super Clark’s Fund is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward . Find out more about our Family funds.