Our warmest thanks go to all of our generous supporters for their commitment to our cause. With your support we are able to:

  • provide free practical and emotional support
  • fund world-class research to find effective treatments and cures
  • campaign to raise awareness and bring about change
  • award grants towards the cost of specialist equipment

Here are just a few examples of projects supported recently:



We have received significant funding for the development of our Advocacy Service; Big Lottery Fund’s support has enabled us to build essential sustainability by training a dedicated group of volunteer advocates to support their peers in securing essential care and benefits packages.


Since 2013, the City Bridge Trust have generously funded our work experience programme building the skills and confidence of young disabled Londoners, supporting them into the world of work. This year the Trust has offered us continuation funding to recruit a new member of staff to lead on the project and develop it over the next three years, building our capacity to support more young disabled people in London.


The Cranbury Foundation has been a long standing supporter of the charity’s work on myotonic dystrophy, and is currently focussing its funding on a research project by Dr Saam Sedehizadeh at the University of Nottingham and Professor Darren Monckton at Glasgow University. The Foundation is a much valued partner and continues to make a vital contribution to our work in this area.


We have received funding towards Professor Thomas Gillingwater’s project at Edinburgh University focusing on motor neurons in spinal muscular atrophy. The trust are generously contributing a significant proportion of the salary costs over the project life time. We are hugely grateful for their support.

The Moondance Foundation are kindly funding our work in Wales. This includes the recruitment of our first ever Care and Support staff member to be based in the country. The new member of the team will focus on increasing the level of support we are able to offer people affected by muscle-wasting conditions in Wales receive both from us as a charity and also from the NHS by working closely with the Welsh Neuromuscular Network to secure vital investment in neuroumuscular services. This would not have been possible without the generous support of the Foundation.

Since 2004, the Montague Thompson Coon Charitable Trust has generously supported our research programme. Now winding up, the Trustees offered us a significant sum to set up a Duchenne lectureship at University College London. Dr Linda Popplewell will now run a five-year lectureship working on a promising potential treatment technique for Duchenne.

Thanks to support from the P F Charitable Trust, we were able to recruit a new member of staff in Scotland to develop our Advocacy Service in 2014. The Trustees agreed to continue to fund this important service development in 2015 as we significantly increase the level of support we can offer people in Scotland.

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