Information for young people: your stories

Living with a muscle-wasting condition can be difficult but that doesn’t mean it has to slow you down! Our Trailblazers network is full of young people who are breaking new ground and creating opportunities every day. They are proof that even when life gets tough, if you keep on going there’s no limit to what you can achieve.


This video, called ‘Hear My Voice’ features teenagers Zoe and Sam, and was filmed and developed by a group of young people from the South West who talk about some of the issues that matter to them. Zoe and Sam give advice and suggestions to other teenagers their age and talk about their experiences, both good and bad, and their desire not to be defined by their condition.

The video was made as part of a project funded by Evan Cornish Foundation and The Austin and Hope Pilkington Trust in partnership with specialist psychologists Dr Sadie Thomas-Unsworth and Jennie Norris. The aim of the project was to encourage a group of young people to talk about living with a muscle-wasting condition by working together to make a film.


This is Hayleigh Barclay who is from South Ayrshire and has SMA type 2.


This is Karis Williamson who lives in Inverness and has congenital muscular dystrophy.


This is Robert Watson who lives in Renfrew and has Duchenne muscular dystrophy.

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