The friendly care and support staff in our London office are here to give you free information and emotional support. They are great listeners. Even though they aren’t trained counsellors or doctors, if they can’t help you themselves they usually know who can.

The helpline is open from 8.30am to 6pm Monday to Friday.

We look forward to hearing from you.

Please note that on our helpline we offer support to anyone over the age of 18. If you’re under 18, here is a list of organisations you can get in touch with for support.


  • Samaritans
    Anyone can contact Samaritans. They offer a safe place for you to talk any time you like, in your own way, no matter how old you are.
    116 123
    www.samaritans.org/how-we-can-help-you/if-youre-under-18
  • SupportLine
    SupportLine offers confidential emotional support to children and young adults by telephone, email and post. They can also give you details of counsellors, agencies and support groups throughout the UK.
    01708 765200
  • Lifetrain Trust
    Lifetrain helps young people reach their potential through their work in youth centres, schools and in the community. They offer training and educational courses, providing young people with the skills and confidence to find their own solutions.
    01372 360875
  • The Mix – essential support for under 25s
    The UK’s leading support service for young people, The Mix is there for you to talk to online, on social media or on their free, confidential helpline.
    0808 808 4994
    www.themix.org.uk
  • National Youth Advocacy Service (NYAS)
    NYAS is a rights-based charity operating across England and Wales for children, young people and adults. They offer a variety of services including a national advocacy helpline, and advocacy for children and young people with disabilities.

    0808 808 1001

  • Teenage Helpline

    Teenage Helpline supports young adults and teenagers by providing advice and support on a variety of issues, online or via email. You can talk to a mentor at Teenage Helpline on any topic – all conversations are completely private.
    www.teenagehelpline.org.uk/keeping-private
    Help@teenagehelpine.org.uk 

  • Childline
    Childline is a free, private and confidential service for anyone under 19 in the UK. You can talk to their trained counsellors about any issue you’re going through, anytime. On the phone, by email, or face-to-face – whatever feels best for you.
    0800 1111
    https://www.childline.org.uk
  • Scope helpline
    Scope provides free, independent and impartial information and support on issues that matter to disabled people and their families.

    www.scope.org.uk/support/disabled-people/young-disabled

    0808 800 3333


Muscular Dystrophy’s UK helpline is a confidential service, we want you to feel safe when you talk to us. We would only need to share what you tell us with someone if:

  • you ask us to get you help because you can’t do this yourself
  •  we believe someone else is at risk of serious harm
  • we are told about acts of terrorism or bomb warnings
  • you are under 18 and we think you are at risk of serious harm
  • you are over 18 and have told us your name and where you are, and we think you are at risk of serious harm

We always want to give you as much control as possible, and will explain our policy to you and tell you if we feel we might need to contact emergency services to help you access support.
If you contact us by phone we will be able to see your phone number, and might use this if one of the situations listed above comes us. If you prefer to remain completely anonymous you might want to withhold your number before calling.
If you contact us by email we will be able to see your email address and your IP address. Please let us know if you would like your contact details to be stored on our database. By being on our database you will receive up to date news, information and notification of events via email.
Anonymised details of queries, such as age and query topic, are kept to help us develop the service and raise funds to keep it going.


Keep in touch
X
- Enter Your Location -
- or -