Our Advocacy Ambassadors have experience accessing the financial and practical support you could be entitled to. Here they discuss some of their experiences as Advocacy Ambassadors and give some tips when applying for support.

  • When applying for a care package there are many things to consider, one of our Advocacy Ambassadors Andy, who has limb girdle muscular dystrophy, discusses what to think about when accessing a care package and his experiences of being involved with Muscular Dystrophy UK. For more advice or to speak to someone then please fill in our form or call 0800 652 6352.
  • Since changes to disability benefits many people have changed over from Disability Living Allowance (DLA) to Personal Independence Payments (PIP), one of our Advocacy Ambassadors Ravi, who has Duchenne muscular dystrophy, speaks about what can be helpful to consider. To hear more or to speak to someone about their experiences please fill out the form or call 0800 652 6352.
  • Adaptations are different for each individual, and sometimes it can feel that people do not understand your condition. Gemma, who has limb girdle muscular dystrophy, speaks about how she was able to help someone look at options and gives more tips on getting adaptations in the home. If you would like more advice or to speak to someone about what they went thorugh when getting adaptations please contact us on 0800 652 6352 or fill out the form.

If you would like to get in touch with an Advocacy Ambassador or find out more about how they can support you then please contact our helpline on 0800 652 6352 or through email on ambassadors@musculardystrophyuk.org.

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