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Someone to talk to

Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice. Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.
A woman who has FSHD and uses a wheelchair smiles while on the phone as she sits in front of a computer screen.
Peer support for you
This sections details the various peer support options on offer and gives you the opportunity to be put in touch with someone who has been through a similar experience.
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Someone to talk to for parents
This section helps parents of someone with a muscle-wasting conditions who wish to be put in contact with other parents in a similar situation.
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Support Groups
Information on a variety of support groups that are available can be found here.
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Local Muscle Groups
To find out about Local Muscle Groups please see here.
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Information on support services available in Wales, Scotland and Northern Ireland can found here.
Virtual therapeutic support groups
We have worked in partnership with Louise Halling, a professional counsellor and psychotherapist, who lives with limb girdle muscular dystrophy, to design a programme of virtual therapeutic support groups.
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