Duchenne Forum launched to tackle Duchenne muscular dystrophy

Published Date
10/10/2013
Author
Dugald Mcnaughtan
Category
Research

The Muscular Dystrophy Campaign is delighted to announce a funding partnership between six UK charities dedicated to beating the devastating condition Duchenne muscular dystrophy. 

The collaboration established between the Muscular Dystrophy Campaign and Alex’s Wish, the Duchenne Children’s Trust, Duchenne Research Fund, Joining Jack and Harrison’s Fund – called the Duchenne Forum – will accelerate progress in the search for effective treatments and eventually cures.  The partnership is supporting seven pioneering Duchenne research projects, to which it will commit £840,000 over the next four years. 

The seven exciting research projects include the development of potential treatments such as up-regulation of utrophin, gene therapy and finding ways to increase the efficiency of using stem cells to replace and repair the wasting muscles in boys and men with Duchenne muscular dystrophy. For more information read the update on the results of this year’s grant round.

Chief Executive at the Muscular Dystrophy Campaign, Robert Meadowcroft, commented:

The Duchenne Forum is a great example of effective charity collaboration.  By funding together we have been able to make a larger investment to move promising therapies forward with greater speed, avoid duplication and keep costs to a minimum. The Duchenne Forum is a really positive step forward in charitable funding for Duchenne muscular dystrophy research, and should be encouraging news for the thousands of families who loyally support our six charities in the hope of beating this devastating condition.
 
Founder and Chief Executive of Harrison’s Fund, Alex Smith, has a son Harrison (7) with Duchenne muscular dystrophy. He said:

It is with great pleasure that Harrison’s Fund, in one of our research strategies, joins the rest of the Duchenne Forum in funding these fantastic projects that will help us change the landscape and lifetimes of those affected by Duchenne Muscular Dystrophy.

Chief Executive of the Duchenne Research Fund, Dr Margaret McDonald, commented:

Joining forces with the other charities under the excellent management of the MDC is maximising our efforts in funding only the best quality research proposals.

Founder of the Duchenne Children’s Trust, Emily Crossley, has a son Eli (6) with Duchenne muscular dystrophy. She said:

We are delighted to be part of the Duchenne Forum. It builds upon and formalises the existing collaboration between the Duchenne Charities in the UK, all of whom are seeking to fund the best possible research into DMD.

Founders of Joining Jack, Andy and Alex Johnson, have a son Jack (4) with Duchenne muscular dystrophy. They said:

Joining Jack are looking forward to working in collaboration with all of these wonderful charities. Hopefully, with us all working together to battle DMD, we can push research forward at an even greater pace.

Chief Executive and Trustee of Alex’s Wish, Andy Hallam, said:

Alex’s Wish is proud to be part of this dynamic group of charities, together we are stronger and will be able to fund more exciting research projects. This is the best way to ensure we fund the right projects and give this generation of boys the hope they need.

 

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