Come along and share your views on psychological services and emotional support for people with muscle-wasting conditions at our consultation event on in Birmingham in three weeks time.
The event is being held on Friday 27th April 2018 at the Eaton Hotel in Birmingham and is part of our Mental Health Matters project. The campaign has been set up to ensure that individuals and families affected by muscle-wasting conditions receive better support with their mental health.
Your views will help inform the ongoing parliamentary inquiry held by the All-Party Parliamentary Group for Muscular Dystrophy into psychological support for people with muscle-wasting conditions.
As part of the project we have set up an expert steering group of health professionals and people affected by muscle-wasting conditions to help drive forward improvements.
Suzanne Glover from County Down, Northern Ireland, who has spinal muscular atrophy (SMA) type 2, is a member of this group. She is also a PhD student at Ulster University and is undertaking research into Resilience in those who care for someone with Duchenne Muscular Dystrophy (DMD).
She writes about her hopes for the project below:
I’m excited to take on my passion of mental health and put time and effort into Muscular Dystrophy UK’s Mental Health Matters project. The idea is to work together and improve access to mental health services, and to develop information and support from the moment of diagnosis onwards.
We will aim to influence government to ensure those with muscle-wasting conditions get the support that’s needed. This is something I’m only too willing to advocate.
Nic Bungay, Director of Campaigns, Care and Information said:
Muscular Dystrophy UK regularly hear from individuals and families living with muscle-wasting conditions who are not receiving adequate support with their mental health and wellbeing. We are really pleased to be holding this consultation event to help improve care and support on offer across the UK.
Full details of the event are available here.
If you would like to attend our consultation event or find out more about the Mental Health Matters campaign then please get in touch with David Stephenson at firstname.lastname@example.org or on 020 7803 4826.