Ahead of the general election on 8 June, Muscular Dystrophy UK is contacting parliamentary candidates from across the UK to seek their support for seven steps to fight muscle-wasting conditions in our Manifesto for Muscle.
Please lobby your candidates and ask them to pledge their support in the fight to beat muscle-wasting conditions! You can find your constituency and the names of your candidates here. Your candidate can sign up to the manifesto pledges by email by contacting Jonathan Kingsley on firstname.lastname@example.org.
We are keen to increase the number of our parliamentary supporters from across the party spectrum who can help us in our campaigns for faster access to treatments, improving specialist healthcare and supporting independent living.
Claire Liggett, whose son, Charlie (pictured), has Duchenne muscular dystrophy, highlights the importance of faster access to treatments in the manifesto.
Exondys 51 helps maintain muscle strength that enables Charlie to walk a little longer and to hug his family and of course it offers, hope! Hope, strength and love is what gets you through and what this approval has given us is just that. We will do anything we can to enable this drug to reach all children that are amenable and support any future trials that can give this feeling to all parents. This drug is vital for giving Charlie and so many others a chance at life.
Seven pledges for candidates to sign up to
The seven pledges we’re sending to candidates are:
- I will back Muscular Dystrophy UK in calling for faster access to new drugs for muscle-wasting conditions.
- I will work to ensure that, after Brexit, patients do not experience delays in accessing emerging treatments for muscle-wasting conditions, the UK continues to be the best place for science and innovation, and the UK maintains its key role in Europe-wide research collaboration.
- I will support my constituents who have muscle-wasting conditions at meetings of the All Party Parliamentary Group for Muscular Dystrophy.
- I will meet with people living with muscle-wasting conditions at Muscular Dystrophy UK’s local peer support ‘Muscle Group’ meetings to discuss the improvements they need to local services.
- I will meet with Muscular Dystrophy UK’s Trailblazers (young campaigners network) in my local area to back their campaign for removing barriers to living independently.
- I will work to promote greater understanding of muscle-wasting conditions among benefits assessment providers and the Department for Work and Pensions so that people with these rare and complex conditions access the benefits they are entitled to as quickly as possible.
- I will work to make sure people with muscle-wasting conditions have access to the expert care, support and equipment they need, including specialist physiotherapy, emotional and psychological support, and respiratory support equipment such as cough assist machines.
How you can get involved
You can share the Manifesto with candidates in your constituency to get them to support you and people with muscle-wasting conditions across the country.
You could also tweet at candidates: @[candidate’s Twitter handle] Will you sign up to @MDUK_News #Manifesto4Muscle to support people affected by muscle-wasting conditions? http://bit.ly/2qrvyEM
Candidates who are supporting the Manifesto for Muscle
Below is a list of candidates who have already signed up to our manifesto pledges:
Carolyn Abbott, Conservative, Gedling
Tonia Antoniazzi, Labour, Gower
Simon Baynes, Conservative, Clwyd South
Olivia Bell, Labour, Caithness, Sutherland and Easter Ross
Mark Blackburn, Liberal Democrat, Somerton and Frome
James Blanchard, Liberal Democrat, York Outer
Samantha Charles, Labour, West Worcestershire
Vernon Coaker, Labour, Gedling
Sir David Crausby, Labour, Bolton North East
Martyn Day, SNP, Linlithgow and East Falkirk
Charles Fifield, Conservative, Bootle
Julian Flood, UKIP, Suffolk West
Gill Furniss, Labour, Sheffield Brightside and Hillsborough
Andrew Garcarz, UKIP, Solihull
Cheryl Gillan, Conservative, Chesham and Amersham
Mary Glindon, Labour, North Tyneside
Dan Greef, Labour, South Cambridgeshire
Sir Nick Harvey, Liberal Democrat, North Devon
Sue Hayman, Labour, Workington
Julie Hilling, Labour, Bolton West
Cara Hilton, Labour, Dunfermline and West Fife
Wera Hobhouse, Liberal Democrat, Bath
Julian Huppert, Liberal Democrat, Cambridge
Andrew Johns, Green, Walthamstow
Sarah Jones, Labour, Croydon Central
John Leech, Liberal Democrat, Manchester Withington
Naomi Long, Alliance, Belfast East
Sandy Martin, Labour, Ipswich
Carl Minns, Liberal Democrat, East Yorkshire
Madeleine Moon, Labour, Bridgend
Greg Mulholland, Liberal Democrat, Leeds North West
Michael Mullaney, Liberal Democrat, Bosworth
Kirsten Oswald, SNP, East Renfrewshire
Julie Porksen, Liberal Democrat, Berwick upon Tweed
Carl Quilliam, Liberal Democrat, Wimbledon
Geoffrey Robinson, Labour, Coventry North West
Chris Ruane, Labour, Vale of Clwyd
Majinder Singh, Labour, Tewkesbury
Vikki Slade, Liberal Democrat, Mid Dorset and North Poole
Lisa Smart, Liberal Democrat, Hazel Grove
Alison Taylor, Labour, Paisley and Renfrewshire North
Michael Thompson, Labour, Bromsgrove
Liz Twist, Labour, Blaydon
Susan Van de Ven, Liberal Democrat, South Cambridgeshire
Gerald Vernon-Jackson, Liberal Democrat, Portsmouth South
Hywel Williams, Plaid Cymru, Arfon
If you have any queries about which candidates are seeking to be elected from your constituency and for more information about contacting them, please contact Jonathan Kingsley at email@example.com or on 020 7803 4839.