Patient registries and clinical trials

Patient registries and clinical trials play an important part in our research work.

Patient registries

These are databases that contain information about people affected by a particular muscle-wasting condition. Most of them focus on the types of information that will help find suitable people for clinical trials. They also have other wider uses, such as developing best practice care and communicating with registered people about advances in research. Find out more about patient registries.

Clinical trials

These test the benefits of promising treatment approaches. We have developed a unique resource within the UK, a list of current international clinical trials into muscle-wasting conditions. Find out more about the clinical trials.

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