“Before I read the CMT symptoms card, I had no idea that my breathing difficulties at night could be related to having CMT and that sleep apnoea was common to

people with this condition. I am excited to see the launch of the CMT symptoms card and hope that it will be able to help other people in the UK with CMT, as much as it has helped me.”

Judith Wellby, who has Charcot-Marie-Tooth disease (CMT)

If you or a member of your family has Charcot-Marie-Tooth disease, the right specialist healthcare can make a significant difference to the quality and length of life. There are lots of helpful resources to help make sure you receive the right care.

We also have information for healthcare professionals who provide care to people living with CMT

Key information currently available

In case of an emergency

  • The CMT symptoms card explains vital and specific issues that affect people with the condition. It gives families the security of knowing they can easily make sure emergency healthcare professionals have
    the right information.

Please order your card by emailing info@musculardystrophyuk.org or calling the Freephone helpline on 0800 652 6352.

Information factsheets

Muscular Dystrophy UK have created factsheets on Charcot-Marie-Tooth disease and other aspects of the living with the condition.

Specialist care

For health professionals

Research

Get in touch

If you would like to order a copy of any listed publications, or talk to someone about any of the information on this page, please contact our Information and Support Team:

Keep in touch