We’re here for you at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about your muscle-wasting condition, and let you know of progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with a muscle-wasting condition
- put you in touch with others living with the same condition, who can tell you about their experiences tell you about the services, equipment and support you’re entitled to.
The SMA gene therapy Zolgensma has today been grant
NICE, NHS England and NHS Improvement have taken advice
Joint letter to NICE regarding ridisplam
Join us for our Virtual Celebrity Sports Quiz