We’re here for you at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about your muscle-wasting condition, and let you know of progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with a muscle-wasting condition
- put you in touch with others living with the same condition, who can tell you about their experiences tell you about the services, equipment and support you’re entitled to.
Find out how you can support Changing Places Awareness Day
Family friendly guide produced for SMA standards of care
Find out what went on at this year's conference
Evan will be pushing Abi the 13.1 mile route in her wheelchair!