We’re here for you at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about your muscle-wasting condition, and let you know of progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with a muscle-wasting condition
- put you in touch with others living with the same condition, who can tell you about their experiences tell you about the services, equipment and support you’re entitled to.
Potential impact of Brexit on medicines access
Find out more and help us spread the message
Find out what came out of our 2019 research grants round
Group of 17 #teamella to run in the Great North Run