We are here for you, and your child, at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about Duchenne muscular dystrophy, and keep you updated about progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with Duchenne muscular dystrophy
- put you in touch with other families living with Duchenne muscular dystrophy, who can share their experiences with you tell you about – and help you get – the services, equipment and support you’re entitled to.
The SMA gene therapy Zolgensma has today been grant
NICE, NHS England and NHS Improvement have taken advice
Joint letter to NICE regarding ridisplam
Join us for our Virtual Celebrity Sports Quiz