We are here for you, and your child, at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about Duchenne muscular dystrophy, and keep you updated about progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with Duchenne muscular dystrophy
- put you in touch with other families living with Duchenne muscular dystrophy, who can share their experiences with you tell you about – and help you get – the services, equipment and support you’re entitled to.
Spinraza set to be available on the NHS in England
The government has launched a public consultation into
Exon skipping and genome editing were tested in the lab
Tireless Tyrone fundraiser receives MBE