We are here for you, and your child, at the point of diagnosis and at every stage thereafter, and can:
- give you accurate and up-to-date information about Duchenne muscular dystrophy, and keep you updated about progress in research
- give you tips and advice about day-to-day life, written by people who know exactly what it’s like to live with Duchenne muscular dystrophy
- put you in touch with other families living with Duchenne muscular dystrophy, who can share their experiences with you tell you about – and help you get – the services, equipment and support you’re entitled to.
Duchenne treatment Exondys 51 gets second rejection
Mitochondrial Disease Awareness Week 2018 is the 16-22 September
A new MDUK grant will look at a self-management intervention
Five physiotherapists are among the amazing runners ta