Hearing about a diagnosis or possible diagnosis of a muscle-wasting condition – whether for yourself, your child or somebody else you’re close to – can often be a shock. We understand because we’ve been told this by people we’ve been supporting in this situation.

Whether you’ve recently been diagnosed, or have been waiting for a diagnosis for some time, we’re here to help. Our Freephone helpline is open from 8.30am to 6pm Monday to Friday. Call 0800 652 6352 or email the team if you’d prefer and they’ll get back to you.

We have a number of factsheets with detailed information about diagnosis. You can download them from this page or order printed copies from us.

Keep in touch