Help shape our work

We have a number of exciting ways in which you can get involved to help to shape Muscular Dystrophy UK’s work as we step up the fight to beat muscle-wasting conditions. We know we can do this more quickly and with greater success, if we work together.

We have a whole range of voluntary positions on the charity’s committees, panels and boards to suit your interests. Some of the roles might require a specific range of skills and experience.

Speaking about his role as a Trustee, Robbie Warner, pictured above with his son Eoghan who has Duchenne muscular dystrophy, said:

I think Muscular Dystrophy UK is a great charity that offers a vast and wide range of services. My family and I have benefited from the support of the charity and being a member of the Board of Trustees is my way of giving back. It has been a great experience with a huge learning curve. If you are interested, I would really recommend getting involved.

Joseph Patrick Trust

If you have direct experience of living with a muscle-wasting condition, or are a health professional, OT or social worker you may want to join our Joseph Patrick Trust Panel. The panel helps to review applications for grants for specialist equipment.

Lay Research Panel

If you have an interest in research into muscle-wasting conditions, you may wish to apply to join our Lay Research Panel. This group represents the voice of individuals and families in considering research projects for funding.

Services Development Committee

The committee is a group chaired by Muscular Dystrophy UK Trustee, Baroness Thomas of Winchester, and includes neuromuscular clinicians, NHS commissioners and patient representatives. The group looks at ways in which specialist services and access to treatments for people with muscle-wasting conditions can be improved and strengthened across the country.  

Finance Committee

For those with an excellent understanding of charity finance, investment management or legal matters, there is an opportunity to join our Finance Committee.

Scottish and Northern Ireland Councils

If you live in Scotland or Northern Ireland why not join our Councils and get involved in discussing the charity’s activity in those countries.

Board of Trustees and becoming a Charity Member

If you have experience of living with a muscle-wasting condition, or a particular interest in fundraising, campaigning or policy work, you might like to consider joining our Board of Trustees or becoming a Charity Member.

Content Advisory Group

If you’re interested in all things communications and marketing-related, join our Content Advisory Group and help shape our content and projects. Your voice will be heard and you’ll help us keep people living with muscle-wasting conditions at the heart of everything we do. You’ll also help us keep our content relevant, engaging and easy-to-understand.

Join us today!

To find out more and register your interest please call 020 7803 4847 or email


Keep in touch