People we know who are living with muscle-wasting conditions have told us how helpful it is to talk to somebody who knows what it’s really like. Somebody who has been through the same sorts of things as you.
So we have set up a number of ways to help you do just that. From our online forum to our local Muscle Groups and our Advocacy Ambassadors, there are hundreds of people who want to help – and who really do understand.
Talk to our peer support volunteers
We have a number of peer support volunteers, people who understand what you are going through, no matter how rare the condition. We can introduce you to one of them so that you can contact them confidentially to talk about how you are feeling. Get in touch to find out more or fill in the form below and we will get in touch.