eLearning modules

eLearning modules n.sutherland@m… Tue, 05/25/2021 - 11:39

Before taking these free e-learning modules we recommend that you first complete our online course providing an introduction to muscle-wasting conditions which you can also access here.

 

OPEN-TACT for paediatric physiotherapists

Content

OPEN-TACT is a new online platform designed to give paediatric physiotherapists the skills and knowledge to offer the best possible care to children with Duchenne muscular dystrophy, SMA, limb girdle muscular dystrophy and Pompe disease.

OPEN-TACT includes:

  • Modules covering assessment scales and management for each condition
  • A Virtual Clinic with video content to learn in an interactive way how to conduct a North Star Ambulatory Assessment (NSAA)

The OPEN-TACT module is CPD-accredited to help physiotherapists upskill.

Accessing the module

Sign up to OPEN-TACT via this link.

 

e-learning module for education professionals

Content

The module covers:

  • Overview of common problems associated with having a muscle-wasting conditions
  • How to identify challenges pupils might face

Outcomes

After completing this module, you will be able to:

  • Identify the needs of a secondary school pupil with a muscle-wasting condition and where they need support
  • Identify how a muscle-wasting condition may affect a pupil’s ability to learn and how this can be managed
  • Know where to go and who to talk to for further advice and information

Accessing the module

You can sign up and take the e-learning module for education professionals via this link.

 

e-learning module for occupational therapists

Content

The module covers a range of areas including:

  • How to support patients with Activities of Daily Living
  • Postural management
  • Transfers
  • Wheelchair needs

Outcomes

After completing this online e-learning module, you will be able to:

  • Provide an explanation of what a safe and suitable assessment is for neuromuscular patients
  • Understand the common issues which neuromuscular patients are likely to experience in trying to obtain a suitable wheelchair or home adaptations

Accessing the module

You can sign up and take the e-learning module for occupational therapists via this link.

 

e-learning module for nurses

The purpose of this module is to provide a guide for non-specialist nurses on how to manage neuromuscular inpatients safely and effectively.

Content

The nursing module covers the following:

  • Information on specialists involved in providing care for neuromuscular patients
  • Respiratory and cardiology care needs of neuromuscular patients
  • Specialist care for patients with genetic conditions
  • Specialist care for patients with acquired conditions

Outcomes

After completing this online eLearning module, you will be able to:

  • understand different types of muscle-wasting conditions
  • identify which health professionals are involved in providing care to people with muscle-wasting conditions
  • have an awareness of the specialist inpatient care required by people with muscle-wasting conditions

Accessing the module

You can sign up and take the e-learning module for nurses via this link.

 

 GP and adult physiotherapy e-learning modules

In 2015, Muscular Dystrophy UK and the Royal College of General Practitioners (RCGP) created the first ever online course for GPs on the presentation and management of neuromuscular conditions in primary care.

Also in 2015, we worked with the Faculty of Health, Social Care and Education, at Kingston University & St George’s University of London, and the MRC Centre for Neuromuscular Diseases, UCLH, to develop a new online e-learning module on neuromuscular conditions for physiotherapists working with adults.

You can access the GP e-learning module here.

The e-learning module for physiotherapists working with adults is available here.

 Palliative care

This e-learning module has been created for any health care professional who would like to understand more about palliative care for people with muscule wasting conditions.

Access the palliative care module.

Adult physiotherapy elearning module

Adult physiotherapy elearning module n.sutherland@m… Tue, 05/25/2021 - 11:28

The purpose of the module is to provide helpful information for community or neuro-physiotherapists to build a foundation of knowledge and skills around the management of muscle-wasting conditions in adults.

Content

The module focuses on 11 short topics that develop critical understanding of the management of muscle-wasting conditions. The topic areas, which include four core topics and seven optional topics, are:

  • overview of neuromuscular conditions (core topic)
  • pathology and presentation of neuromuscular conditions (core topic)
  • assessment and outcome measures (core topic)
  • exercise (core topic)
  • orthotic management
  • respiratory management
  • transition
  • contracture management
  • postural management
  • wheelchairs and mobility
  • fatigue

Accreditation

The module allows you to decide which topics you wish to complete. If you complete the core topics plus two optional topics, you will be able to request a certificate for your CPD file.

Accessing the module

You can sign up and take the physiotherapy e-learning module for free via this link.

GP elearning module

GP elearning module n.sutherland@m… Tue, 05/25/2021 - 11:35

The new training module, which has been developed by a group of neuromuscular clinical experts, people with muscle-wasting conditions, Muscular Dystrophy UK’s Bridging the Gap team and GPs, includes important information in an easy-to-use format.

The course will help GPs have a better understanding of their role in the management of neuromuscular conditions. It will also help them recognise the key moments when a patient needs to be referred to a specialist neuromuscular service.

The course can be accessed and taken via the Royal College of General Practitioners website here.

About neuromuscular disorders

Neuromuscular disorders are rare and many general practitioners will have very few patients with these conditions. However, people affected by muscle-wasting conditions know that their GP plays an important role in their care.

In 2013 our State of the Nation report found that nearly half of those surveyed felt their GP did not understand their muscle-wasting condition well enough to put in place the right support for them. And two out of five patients felt that their GP did not understand their condition sufficiently to refer them to the appropriate specialists.

A delayed diagnosis of a neuromuscular condition can be particularly devastating for families and can also mean that people are not able to access the optimum care at the earliest opportunity. It also prevents families from adapting and planning ahead from an early stage.

Muscular Dystrophy UK hopes that our new course will lead to more people getting faster referrals to neuromuscular specialists. Earlier diagnosis will ensure families get access to the therapeutic approaches currently in clinical trial or development.

About the course

This new training module, which is hosted on the Royal College of General Practitioners e-learning training website, only takes an hour to complete. It is worth one accredited continued professional development point. The course is also free to GPs who are members of the Royal College.

After completing this course, GPs will be able to:

  • Understand the spectrum of neuromuscular disease
  • Identify the key presenting features of the more common neuromuscular diseases
  • Describe management, including the importance of multi-disciplinary care.

We are working hard with the RCGP to ensure as many GPs as possible are made aware of this course.

Dr Sheonad Laidlaw, a GP from Glasgow who has two daughters with spinal muscular atrophy said:

Although neuromuscular disorders are rare, and many GPs will have very few patients with these conditions throughout our careers, we play an important role in identifying and supporting the 70,000 people in the UK who live with a muscle-wasting condition. We need to know when and where to refer these patients and be confident in managing acute complications, such as respiratory infections.

 

These conditions are life-limiting and the individuals affected deserve the best quality of life possible through good holistic care. This course will help GPs recognise and manage some of the more common neuromuscular diseases.

To find out about the GP e-learning module, contact the Campaigns team on campaigns@musculardystrophyuk.org