If you want to find out more about your condition, need practical advice on adapting your home, or help with fighting for your rights, you’ll find the information on our website from our free publications library.
We also provide advice on financial support and funding for equipment.
We support more than 5,000 families every year, offering helpful advice and information. Through our advocacy service we help families and individuals who have difficulties getting the services that they are entitled to.
Our information and resources can help you get the support you need, when you need it most, wherever you are. And if you are a carer, you can find out more about the carer services in your community, the places where you can find the help that you are entitled to and meet other carers.
If you live outside the UK there are various patient organisations across the world that can help you – you can find out about them here, too.
One caller explains just how supportive the helpline team can be
MDUK Muscles Matter 2020 – Saturday 10 October round-up
NICE will begin appraisal of SMA treatment risdiplam in autumn
Advocacy support in Wales helps Kerry get vital assistance