Treatment Fibrodysplasia Ossificans Progressiva (FOP)

Many types of treatment have been tried in the past and none of these has been shown to be of benefit.

A number of new medications are being evaluated at the present time and further information about these trials is available on the IFOPA website, see below.

Does anything make FOP worse?

Injury to the muscles can often provoke local bone formation. For this reason intramuscular injections should be avoided if possible.

Similarly operations on the muscles to remove pieces of bone almost invariably result in increased bone formation. Also, some forms of dental treatment may result in bone formation in the jaw muscles and you should therefore warn your dentist that you have FOP.