Our Scottish Conference & AGM will be held on Saturday 11 November 2017 at the Golden Jubilee Conference Hotel, Glasgow.
The conference will feature platform presentations, a variety of interactive workshops and our annual Inspire Awards. Please note that the day crèche is now full. Please contact Princess Menkiti-Udom on the email below if you have any questions.
View our programme for the 2017 Scottish Conference here.
View our programme for the 2017 Scottish Trailblazers Young Persons’ Conference here.
To obtain further information please email Princess Menkiti-Udom Infoday@musculardystrophyuk.org
Friends of MDUK get 50% discount on conference tickets, as well as a whole host of other great benefits: the charity magazines sent to their doors, discount on holidays and specialist insurance and more. To become a Friend today, visit Friends of MDUK or call 0300 012 0172.
Already a Friend? Please get in touch with us for your discount code on 0300 012 0172 or firstname.lastname@example.org
Conference workshops and speakers
Our keynote speaker is Dr Helena Chaytow, on behalf of Professor Tom Gillingwater from the University of Edinburgh. The recent approval of Spinraza has transformed the outlook for people with spinal muscular atrophy (SMA), and Prof Gillingwater believes that – although challenges remain – we ‘stand at the dawn of a new therapeutic era for neuromuscular conditions’. By looking at recent developments in the SMA field and, what the future may hold, Dr Chaytow will discuss how lessons learned from development programmes in SMA can be applied to a broader range of muscle-wasting conditions.
In this workshop, Dr Claire Wood will explain how bones and muscles grow and develop, and how this may be affected in children and adults with neuromuscular conditions. She will also discuss why the skeleton should be an important focus in neuromuscular care, and will introduce some of her own research on bone development in Duchenne muscular dystrophy.
Dr Mark Hamilton is a specialty registrar in clinical genetics, with a longstanding interest in neuromuscular conditions. His workshop will include insights from his own research, which was funded by MDUK, exploring measures of fatigue, sleepiness and cognitive problems in people with myotonic dystrophy.
In this workshop, Peter Brawley from Take Control Scotland will talk about ways to manage your own care, with a focus on recruiting and managing PAs. Peter has been involved in the independent living movement for over 25 years, during which time he has set up the Glasgow Centre for Inclusive Living and served on various Scottish government committees, regarding among other topics the implementation of direct payments.
Occupational Therapist Demelza Stuart, who also works for MDUK as an Advocacy and Information Officer, will be joined by her colleague from the clinical development team, Jacqueline Munro, to run this workshop on aids and adaptations. Both Demezla and Jacqueline support families living in Northern Ireland and Scotland respectively, on issues such as housing, equipment or adaptations.
Neeru Malhorta, Head of Neuromuscular Support and Professional Development at MDUK will be speaking about equipment and assistive technology.
Physiotherapist Jane Freebody will be running a workshop on physiotherapy and exercise. In her clinic work in Oxford, Jane sees individuals with muscle-wasting conditions and tailors exercise plans for them. Her particular areas of interest are activity, exercise and orthotics.
All day surgeries
Greg Colburn, Solicitor from Anderson Strathern, and Emma Jeremy, Advocacy, Information and Engagement Officer from MDUK will be available to give advice on accessing financial and practical support.
Gill Paton and Wilma Stewart, Neuromuscular Care Advisors, will be available for advice and support.
Physiotherapist Jane Freebody will be available to answer questions on physiotherapy and exercise.
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