November Information Day

Event Date
23 November 2019
York Racecourse, Knavesmire Road, York YO23 1EX
Registration fee
woman at conference

Join us for a free information day for individuals and families affected by facioscapulohumeral muscular dystrophy (FSHD), spinal muscular atrophy (SMA) and myotubular and centronuclear myopathy.



Date: Saturday 23 November

Time: 10am – 4pm (Registration from 9.30am)

Location: York Racecourse, York

Leading researchers and clinicians will be there to tell you about the latest research and healthcare. There will also be a range of exciting condition-specific workshops around independent living.

Our myotubular and centronuclear myopathy workshops are being delivered in partnership with the Myotubular Trust.

You’ll get to meet others living with muscle-wasting conditions and enjoy a day filled with practical advice and information about improving your quality of life.

Our advocacy team will also be on hand to answer any questions you may have about getting the services and equipment you are entitled to.

The booking for this event will be on a first-come, first-served basis, to reserve your free place please fill out the online form below.

If you have any questions about the day please get in touch with us on 08006526352 or email infoday@musculardystrophyuk.org

Lunch will be provided but please be aware there are no crèche facilities on the day. There is plenty of on-site parking and the racecourse is close to York train station which has step-free access and staff help available.  We’ve created a guide to accessible hotels near the Racecourse if you are staying overnight in York.

The agenda for the day will be:


Welcome and Introductions 
Catherine Woodhead, CEO, MDUK

Transforming lives through research
Kate Adcock, Director of Research and Innovation, MDUK

11am–11.15 am
Campaigns, Care and Support
Robert Burley, Director of Campaigns, Care and Support, MDUK

Workshop 1 Condition specific


Workshop 2 Condition specific

Workshop 3 Condition specific


Financial and Practical support
Neeru Naik, Head of Information, Care and Support, MDUK
Beth Tingley, Care, Support and Advocacy Officer, MDUK

Robert Burley, Director of Campaigns, Care and Support, MDUK


Please use the form below to register for your place.

For more information

Book your place now

Information Day November 2019

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