A key part of achieving this is ensuring that people with muscle-wasting conditions at a high-risk of needing emergency care can have their details added to ambulance service ‘flagging’ systems. This means that paramedics and first responders are alerted that the person they are treating has a neuromuscular condition.
Muscular Dystrophy UK initially collaborated with the London Ambulance Trust to develop the ‘Coordinate my Care’ technology to include families and individuals with a muscle-wasting condition. We are now working with people with muscle-wasting conditions, health professionals and ambulance services to ensure that no matter where someone lives in the UK, they have access to a similar, specialist ‘flagging’ system.
Following our campaign, in 2018 two new areas of the UK, West Midlands and Northern Ireland, have started adding people to their flagging systems for the first time.
In 2019 we launched our Ambulance Action report.
Our campaign centres around:
- Working with people with muscle-wasting conditions, health professionals and ambulance services to ensure that no matter where someone lives in the UK, they have access to a similar, specialist ‘flagging’ system
- Ensuring clinicians are aware of Ambulance flagging systems where they are available, to support paramedics’ knowledge of muscle-wasting conditions, allowing them to give appropriate treatment
- Working in partnership with paramedics to better support the emergency care of people with muscle-wasting conditions
- Creating and distributing condition-specific alert cards that advise health professionals on the key do’s and don’t’s when caring for someone
- Working closely with ambulance services via our Services Development Committee, chaired by Baroness Celia Thomas of Winchester
Ravi Mehta 28, who has Duchenne muscular dystrophy said:
I hope this new scheme in London will make a difference to people like me with muscle-wasting conditions. My respiratory problems can be frightening, and to know that a medical team will have full access to my medical records in an emergency is a huge relief. It’s important this scheme is available for all people with muscle-wasting conditions across the country
- Our Services Development Committee will continue to discuss vital next steps in improving emergency care
- Continuing to work with people with muscle-wasting conditions, health professionals and ambulance services to ensure that no matter where someone lives in the UK, they have access to a similar, specialist ‘flagging’ system
Bobby Ancil, Head of Outreach, Commissioning and Professional Development at Muscular Dystrophy UK said:
We’re really pleased to be working in partnership with ambulance services and paramedics to ensure individuals and families with muscle-wasting conditions know that they will receive high quality care in an emergency.
Get in touch to hear more about this work at firstname.lastname@example.org to share your experience of emergency care and find out more about our Ambulance Action campaign.