Anne’s Wish is a family fund set up by Rob Eddon and family to raise funds in memory of Anne, who sadly passed away suddenly on the 9th February 2016. The money raised will help to fund research into inclusion body myositis (IBM) in her memory as Anne herself had the condition.
Anne was diagnosed with IBM through consultations and tests under the supervision of Professor Sir Doug Turnbull at the RVI Newcastle. IBM effects the ability to swallow, arm and leg muscles weaken leading to the person with the condition falling over.
Rob and Anne’s love was spending time on their narrowboat, which they had to sell due to the progression of Anne’s condition. In 2017 Rob continued their dream by purchasing another narrowboat, ELESHANNE, which has led the way to helping raise over £14,000 for research and raising vital awareness of IBM.
The Family Fund were adopted by Aqueduct Marina Church Minshull as their charity of the year in 2017 which helped to raise more than £4,000 through Go Orange, Marina Open Days and a team of staff completing Tough Mudder.
Family members and colleagues also took part in the Great North Run in 2017 and a group of friends completed the Channel Islands swim from Dover to Calais.
So far Anne’s wish have held a “70’s night which raised £890 for IBM research and they have lots of other amazing activities planes such as a Coast to Coast bike ride, Screwball rally, and other themed fundraising nights.
A warm welcome to Anne’s Wish.
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