Clair and Richard’s four-year-old son Conrad was diagnosed with Duchenne muscular dystrophy in June 2013. They set up Conrad’s Fight to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Conrad was born with two lazy eyes which required corrective surgery at the age of two and three, as well as an oversized kidney, which also required surgery. Conrad then started experiencing seizures in December 2012, and after a series of blood tests at Leeds General Infirmary, Conrad was diagnosed with Duchenne muscular dystrophy in June 2013.
Duchenne muscular dystrophy is a muscle-wasting condition that causes muscles to slowly and progressively weaken and waste away. At the moment Conrad is not too severely affected, however he does get tired after walking long distances and he struggles to ride his bike. His condition also affects his balance and he falls over easily.
Clair and Richard were understandably shocked following Conrad’s diagnosis. They said:
We had never even heard of the condition. We decided after a few weeks of the diagnosis that we wanted to do as much fundraising as we could for Conrad and all the other boys who suffer from this condition. We have met up and spoke with other families who have children with this condition which has really helped us a lot as now we don’t feel alone.
How you can help
Setting up a family fund like Conrad’s Fight is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.