#DDFD Defying Duchenne for Dylan

On May 24 2018 Dylan was diagnosed with Duchenne muscular dystrophy aged seven…the day Michelle and Andrew’s lives changed forever.

Dylan’s Mum, Michelle said

 “The thought that one day Dylan won’t be able to lift his arms to give me one of his hugs is too upsetting to think about. To think about all the things he will no longer be able to do as this cruel disease takes hold is beyond devastating. It is very easy to dwell on the negatives but we try to focus on today and any positives we can.”

“Dylan is wise beyond his years. He is an absolute character with an infectious laugh and love for life. Dylan is extremely tactile and emotionally mature … his hugs would melt anyone’s heart. He is an only child yet his house is never quiet with his cheeky chappy chat and imaginative games. Dylan is our world.”

The family have taken part in the Bake a Difference event; Move a Million Miles for Muscles and Make Today Count sky dive along with coffee mornings and sponsored walks raising more than £8,000 so far.

Net proceeds from the families fundraising will be split 80/20% between MDUK's research into Duchenne muscular dystrophy and help to support the family with future welfare needs

 

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