Kerry and Wayne Collins’ son Harvey was diagnosed with Duchenne muscular dystrophy in 2009 when he was three years old. They have set up Faith and Hope in Harvey Fund to raise vital funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Harvey was diagnosed with Duchenne muscular dystrophy after the family noticed he was unable to run about and play like his peers. He was first seen by health visitor, then paediatric physio and then referred to local their Paediatrician who diagnosed Duchenne muscular dystrophy.
Kerry Collins said:Currently Harvey is mobile and walks almost everywhere, he has a manual wheelchair which we use very rarely, he is able to ride his bike at this time although struggles on hills! He is also currently trying to learn to swim.
His main areas of difficulty are climibing stairs, and getting up if he falls down or is required to sit on the floor for any reason. We have received immense support from our family and friends and also from Muscular Dystrophy UK family support worker Sue Gallagher.
Between family and friends the Collins’ have done a number of fundraising activities, including two charity auctions, a valentines disco, a half marathon, the London marathon, cake sale and a quiz night raising in excess of £11000 so far. They have many more planned including a make today count skydive!
Our aim is to pool our contacts and resources to raise as much money as we possibly can for the Duchenne Research Breakthrough Fund in the hope that one day a treatment or cure will be found for Harvey and all the other boys like him.
How you can help
Setting up a family fund like Faith and Hope in Harvey is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.