Freddy is a four year old boy who loves playing with cars and being outside, he is also kind and very funny. In November 2016 Freddy’s nursery teacher noticed some differences in behaviour between Freddy and his peers, the family decided to take him to a paediatric specialist. After months of appointments and blood tests, in December 2017 Freddy was finally diagnosed with Duchenne muscular dystrophy.

Emma and Josh, Freddy’s parents, were distraught at the diagnosis. This has inspired them to raise money for the Duchenne Research Breakthrough Fund in the hope that a cure can be found that will help Freddy.

We are only just starting our journey with muscular dystrophy. The bulk of funds we raise will be for Muscular Dystrophy UK to fund research into the condition, with a portion being saved to pay for specialist equipment Freddy will need as he grows and his symptoms worsen. We are planning ahead, accepting that Freddy will require a motorised wheelchair and alterations to the family home to enable our son to live with dignity and independence.

At the moment there is no cure but together, with your help, we can fight for one”.

Setting up a family fund like Freedom for Freddy is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.


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