Kaden has Duchenne muscular dystrophy. His mother Lisa set up Kaden’s Fund to raise awareness and funds for the Muscular Dystrophy Campaign’s Duchenne Research Breakthrough Fund.
Kaden was diagnosed on 1 June 2011 when he was four years old, at Leeds General Infirmary. Lisa describes this as “a day I will never forget, the worst day of my life.”
Lisa visited her GP when she started to notice Kaden falling over regularly. He couldn’t walk very far and when he did, he complained of pains in his stomach. Kaden was referred to a paediatric consultant at Dewsbury District Hospital, who ran a series of blood tests, and assessed Kaden’s walking, running and jumping ability. Two months later Kaden was diagnosed with the severe muscle-wasting condition Duchenne muscular dystrophy.
I was devastated to be told that my son’s muscles would slowly waste away and leave him unable to walk and that he would lose the use of most of his body. At the moment to look at him you wouldn’t be able to tell that he even has the condition but he cannot walk far and has to use a wheelchair when we are walking long distances.
Kaden now receives daily physiotherapy at home and school, takes steroids to maintain his muscle strength and wears splints at night to keep his feet and ankles in the correct position.
Understandably, it took Lisa a long time to get over the shock of this devastating news, but the hospital put her in touch with Muscular Dystrophy UK who provided her with information and support. Lisa is now determined to do what she can to raise awareness and much needed funds for the charity, and has been working with Regional Development Manager Sara Wilcox to set up Kaden’s Fund and organise fundraising events.
How you can help
Please support Kaden’s Fund by making an online donation.
Setting up a family fund like Kaden’s Fund is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our Family Funds.