Kyle is five years old and has Duchenne muscular dystrophy. His family set up Kyle’s Fund to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

KyleKyle was diagnosed with Duchenne muscular dystrophy in January 2013, after concerns grew over his physical progress. Key milestones took him longer to reach compared to other children his age, and when he did start walking, he would loose his balance easily and fall over a lot.

Jenna and Kevin took him to their doctor to investigate this further however they were repeatedly told ‘not to worry, all children are different’. They persevered and eventually got an appointment with a paediatrician who ran a series of tests. Kyle was then diagnosed with Duchenne muscular dystrophy.

Since the diagnosis Jenna and Kevin have signed Kyle up to take part in a clinical trial at Yorkhill Hospital in Glasgow, which will involve him undergoing steroid treatment. This will not only help doctors identify the best way to give steroids to boys with Duchenne muscular dystrophy, but offers hope for the future and may enable Kyle to walk for longer.

The family started fundraising as soon as they received Kyle’s diagnosis, and all funds raised through their family fund will support research work into effective treatments for Kyle and other boys affected by Duchenne muscular dystrophy.

Team Kyle helped recruit a vast number of family and friends to participate in the 2013 and 2014 Edinburgh Marathon. Kyle’s former nursery, The Bumble Bee Nursery, have also held two “Walk A Mile for Kyle” events. In 2013 they also helped arrange a bungee jump with friends and family getting involved which helped raise over £16,000.

Since 2013 Team Kyle have raised in the region of £31,839 in support of the charity.

Jenna said: “Muscular Dystrophy UK has been great. They help take our mind off everything and help us with our fundraising. They have given us a lot of information about the condition, helped answer our questions, and have put us in touch with other families affected by Duchenne muscular dystrophy.”

Read more about Kyle’s Fund

How you can help

Setting up a family fund like Kyle’s Fund is a great way to fundraise for the Muscular Dystrophy Campaign to keep our vital research moving forward. Find out more about our family funds

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