Luke, was diagnosed with Duchenne muscular dystrophy in May 2012. His mum Claire has set up this fund to help raise awareness and help fund research into Duchenne.
Luke’s family have a long history with Duchenne muscular dystrophy. His great grandmother had three sons with Duchenne. Claire knew she was a carrier and took Luke to be tested when he was just one, despite showing no symptoms.
After Luke was diagnosed, his parents came to a decision.
We decided that night that we could either let the heartbreak consume us or we could use that energy to firstly ensure that Luke will always be happy and secondly that we will fight tooth and nail to make sure that Luke’s fate wouldn’t be the same as his Uncle and Great Uncles before him.
The O’Hanlons’ have been aware Muscular Dystrophy UK for many years due to Luke’s uncle, Mark, who also had Duchenne.
Claire took part in a fundraiser to the Sahara in 2007 to raise funds.
this was the first time that I was able to meet other people affected by Duchenne and other neuro muscular conditions and was a fantastic experience
The family have thrown themselves into fundraising, from street collections, coffee mornings, to fashion and races they are active in the fight to help Luke.
How you can help
Setting up a family fund like Leap for Luke is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.