Marie, Andy and Marcus live in Bracknell, Berkshire. Marcus, was diagnosed with Duchenne muscular dystrophy on July 15 2016, a week before Marcus’s seventh birthday. The family have set up Moving Muscles for Marcus, to raise awareness of the condition and funds to research cures and possible treatments.
Marcus loves Minecraft, playing his PS4 and watching Stampy and Dan. He is a lively, cheeky eight year old and the Family Fund want to do as much as they can to give Marcus the best possible chance.
Children are typically diagnosed with Duchenne muscular dystrophy between the ages of two and seven, however Marcus hit all his physical milestones before the average age, although Marie and Andy did notice that he was slightly slower than his friends.
Marie and Andy’s concerns grew after a friend from pre-school days got in touch after her son was diagnosed with Duchenne muscular dystrophy. Marcus went for x-rays in 2015 and while these came back showing nothing was wrong, Marie and Andy were still concerned and Marcus was referred to specialists and sent for blood tests.
“July 15 2016 our world came crashing down around us. Marcus was diagnosed with Duchenne muscular dystrophy. The word ‘short term life expectancy’ were the last words I remember hearing from that appointment.”
“The past year has been an emotional rollercoaster; we’ve cried more tears that I thought possible but now we have turned a corner. We are concentrating on making amazing memories with our gorgeous Marcus, so that when the dark days hit we can reflect on the fabulous memories we have made.”
Marie, Andy and Marcus want to raise as much money as possible to fund research into a cure and treatments and also to be able to provide Marcus with what he needs in the future. They have already had amazing fundraising successes from walking over the O2 to hold a charity cricket matches and a charity ball.
How you can Help
Setting up a family fund like Moving Muscles for Marcus is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward . Find out more about our family funds.