Raising money to support scientific research projects for the rare neuromuscular disorder nemaline myopathy.


The Nemaline Myopathy Support Group community has been hearing of interesting and exciting advances in muscle disease research for a few years and would love to boost further projects and associated infrastructures to bring forward easier, quicker and cheaper diagnosis & treatments or cure.

We hope you can help by donating whatever you can to our rare condition.

L – R: Jaymi, Theo and Jude



How you can help:
More information can be found at nemaline.org

You can donate to the Nemaline Research Fund JustGiving page.

You can join the Facebook support group.

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