Callum’s family were told by their paediatrician that he had been diagnosed with a spontaneous mutation of Duchenne Muscular Dystrophy. His paediatrician visited the family home to explain everything, which the family were grateful for, as sadly some families are given this news over the phone. Callum now does physiotherapy twice a day, and is taking the steroid Deflazacort, which he is doing quite well on.
Callum’s parents could not be prouder of him; they describe him as a “funny, caring little boy who’s in primary one at school and absolutely loving it!”
#teamcallum is made up of Laura, Paul, Caitlín and Callum as well as their extended family and friends in the Limavady area.
So far they have raised £1000 from Termoncanice School dress up day and £1500 from a fundraising event at the Underground Bar in Draperstown. Paul is taking part in the Make Today Count Skydive and they are a nominated charity for an event called Dance Fever.
#teamcallum are ambassadors for the local area, often attending events on behalf of the charity.
Laura is a fantastic campaigner and has met with the NI Health Minister to lobby for Translarna to be approved in Northern Ireland. All funds raised will go to the Duchenne Research Breakthrough Fund to help find a cure for Callum and others in the same position.