Callum’s family were told by their paediatrician that he had been diagnosed with a spontaneous mutation of Duchenne Muscular Dystrophy. His paediatrician visited the family home to explain everything, which the family were grateful for, as sadly some families are given this news over the phone. Callum now does physiotherapy twice a day, and is taking the steroid Deflazacort, which he is doing quite well on. Callum also takes Translarna after his Mum Laura led a fantastic campaign to make sure it was approved for use in Northern Ireland.
#teamcallum is made up of Laura, Paul, Caitlín and Callum as well as their extended family and friends in the Limavady area.
So far they have raised over £20,000 since #teamcallum was set up, taking part in skydives, abseils, and holding their own events such as Fun Days and raffles.
#teamcallum are ambassadors for the local area, often attending events on behalf of the charity.
All funds raised will go to the Duchenne Research Breakthrough Fund to help find a cure for Callum and others in the same position.