Our family funds

Our beautiful Son George was diagnosed with Duchenne Muscular Dystrophy just before his 4th birthday.

Joseph Hutchinson was diagnosed with Duchenne muscular dystrophy in 2016 at the age of 4. Originally from Yorkshire, Joseph now lives on the Isle of Anglesey with mum Katherine, dad Gareth and older sister Elizabeth.

Oscar and Sebastian Spink are identical twins from Lymm in Cheshire where they live with older sister Scarlett, mum and dad Kerry and Grant and their three dogs Pip, Bert and Ernie.

The Q Trust was set up in 2001 by Mark Reynolds in memory of his friend Quentin Crewe who was a celebrated journalist, writer and society figure who travelled extensively. Mark worked tirelessly to raise awareness and support for others with muscle-wasting conditions until he passed away in 2005 as a result of his own condition. Mark’s passion for the cause lived on through his wife Jemima, until her untimely passing in 2015. Their family’s contribution to Muscular Dystrophy UK is unrivalled.

In 2010 Meriel (aged 21 months) was diagnosed with Nemaline myopathy, a very rare muscle condition with no treatment or cure, which changed the lives of her family overnight.

Somhairle was always a little clumsy when walking, often falling over which seemed normal for any toddler starting to walk. As Somhairle passed his second birthday, and his unsteadiness remained, parents Gerry and Sarah noticed that he also struggled with stairs. Initial chats with GP’s suggested he would grow out of it and an early physio assessment didn’t pick up anything

Emily and Anthony Garbutt have set up Abbie Can Family Fund for their daughter, Abbie, who was diagnosed with Facioscapulohumeral muscular dystrophy in September 2018 at the age of 7.