Our family funds

Family Fund Succeeding for Sandra was set up in September 2019 in memory of Nikita Ellithorn’s mum Sandra and in support for Nikita’s younger sister Alannah.

Sean Spencer from Rawtenstall in Lancashire was 30 years old when he noticed signs of weakness in his legs – which he found particularly worrying as he had such a passion for sporting activities.

In many ways Harrison is like other children, he loves to dance and support his football team – Reading! But his parents had noticed that Harrison was having trouble walking upstairs, and was unable to run or jump properly- especially in contrast to his twin brother, Connor, and older sister, Summer. In November 2015, Phil and Julie Loosen were given life-changing news. Their little boy was diagnosed with Becker muscular dystrophy. Harrison was just four years old.

Jenson Edwards, lives in Buckley in North Wales and was diagnosed with Duchenne muscular dystrophy in February 2016.

Emma and Matthew’s son Jack was diagnosed with Duchenne muscular dystrophy in October 2014, just before his third birthday. They set up a Family Fund, Fighting Back for Jack, to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Josh McClean lives in Ballymoney Northern Ireland with his parents Dave and Mandy and his sister Rebecca. Josh loves lego, computer games and going to watch ice hockey games with his Dad. Josh’s family describe him as a very special and positive wee boy.

I’m in for Will is a family fund set up by Caroline and Robert after their son William was diagnosed with Duchenne muscular dystrophy in 2015. William loves playing on his X-Box, building Lego and spending time with his little sister Rosie and despite his condition he never stops smiling