Our warmest thanks go to all of our generous supporters for their commitment to our cause. With your support we are able to:
- provide free practical and emotional support
- fund world-class research to find effective treatments and cures
- campaign to raise awareness and bring about change
- award grants towards the cost of specialist equipment
Here are just a few examples of projects supported recently:
We were delighted to receive generous funding from Simplyhealth which is enabling us to equip the UK’s neuromuscular care advisors (NCAs) with the skills and knowledge to be able to better support the holistic mental health needs of people living with a muscle-wasting condition.
Unfortunately, only 8 of the 24 UK muscle centres have access to a specialist psychologist, and all too often NCAs are the people who are expected to pick up the slack in the psychological support. With the support of Simplyhealth, we are now able to deliver tailored psychological skills training that will help these health professionals support the families they work with
The City Bridge Trust is funding Muscular Dystrophy UK’s highly successful work experience programme, Moving Up, which has provided work experience opportunities for many young disabled people in London. This is part of their broader ‘Bridge to Work’ programme, through which they are supporting a group of charities to provide work experience opportunities for disabled Londoners. They also supported the development of the Trailblazers recent report on young disabled people and employment: Ready and Able.
The Cranbury Foundation has been a long standing supporter of the charity’s work on myotonic dystrophy. The Foundation is a much valued partner and continues to make a vital contribution to our work in this area.
After a successful pilot in 2018, the Bupa UK Foundation have provided funding for a series of wellbeing camps for young people aged 18-30 living with a muscle-wasting condition. The camps in the Lake District, Exmoor and Kielder aim to build self-confidence and resilience through workshops and outdoor activities.
Through their Tech for Good programme, Comic Relief and the Paul Hamlyn Foundation are supporting Muscular Dystrophy UK to develop a pilot online Holistic Needs Assessment portal, where people living with muscle-wasting conditions can conduct their own wellbeing assessments. This would make it easier for NCAs (Neuromuscular Care Advisors) to manage their care plans and enable them to be signposted more quickly to specialist services. There are only 60 NCAs, supporting thousands of patients across the UK.