Our warmest thanks go to all of our generous supporters for their commitment to our cause. With your support we are able to:

  • provide free practical and emotional support
  • fund world-class research to find effective treatments and cures
  • campaign to raise awareness and bring about change
  • award grants towards the cost of specialist equipment

Here are just a few examples of projects supported recently:

We were delighted to receive generous funding from Simplyhealth which is enabling us to equip the UK’s neuromuscular care advisors (NCAs) with the skills and knowledge to be able to better support the holistic mental health needs of people living with a muscle-wasting condition.
Unfortunately, only 8 of the 24 UK muscle centres have access to a specialist psychologist, and all too often NCAs are the people who are expected to pick up the slack in the psychological support. With the support of Simplyhealth, we are now able to deliver tailored psychological skills training that will help these health professionals support the families they work with

The City Bridge Trust is funding Muscular Dystrophy UK’s highly successful work experience programme, Moving Up, which has provided work experience opportunities for many young disabled people in London. This is part of their broader ‘Bridge to Work’ programme, through which they are supporting a group of charities to provide work experience opportunities for disabled Londoners. They also supported the development of the Trailblazers recent report on young disabled people and employment: Ready and Able.

The Cranbury Foundation has been a long standing supporter of the charity’s work on myotonic dystrophy. The Foundation is a much valued partner and continues to make a vital contribution to our work in this area.

Since 2004, the Montague Thompson Coon Charitable Trust has generously supported our research programme. Now winding up, the Trustees offered us a significant sum to set up a Duchenne lectureship at University College London. Dr Linda Popplewell is making exciting progress in her five-year lectureship working on a promising potential treatment technique for Duchenne.

With thanks to support from the P F Charitable Trust, we are funding new research into nemaline myopathy.

 The Boost Charitable Trust is supporting Muscular Dystrophy UK in our partnership with the Wheelchair Football Association to increase access to Powerchair Football across the country. Powerchair Football is a unique and rapidly growing disability sport which is particularly popular among people with progressive muscle-wasting conditions because a player’s disability does not impact upon their ability to take part and compete. As a result of this programme, more people with muscle-wasting conditions and other disabilities are able to experience the social and psychological benefits of team sport.

After a successful pilot in 2018, the Bupa UK Foundation have provided funding for a series of wellbeing camps for young people aged 18-30 living with a muscle-wasting condition. The camps in the Lake District, Exmoor and Kielder aim to build self-confidence and resilience through workshops and outdoor activities.

The Garfield Weston Foundation have made a major contribution towards setting up the MDUK Oxford Neuromuscular Centre.

Through their Tech for Good programme, Comic Relief and the Paul Hamlyn Foundation are supporting Muscular Dystrophy UK to develop a pilot online Holistic Needs Assessment portal, where people living with muscle-wasting conditions can conduct their own wellbeing assessments. This would make it easier for NCAs (Neuromuscular Care Advisors) to manage their care plans and enable them to be signposted more quickly to specialist services. There are only 60 NCAs, supporting thousands of patients across the UK. 

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