Muscular Dystrophy UK highlights a master craftsman to mark Rare Disease Day 2021
On this year’s Rare Disease Day, Sunday 28 February 2021, we are showcasing the achievement of master craftsman Paul Tomlin and his amazing, traditional building skills.
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PepGen secures $45m investment to drive molecular patches to clinic
10/12/2020PepGen’s work into molecular patches seeks to help people with Duchenne muscular dystrophy (DMD) and other muscle-wasting conditions.
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Green light for a Duchenne muscular dystrophy gene therapy in France
07/12/2020These are exciting times for the development of treatments, some of which have the potential to markedly improve outcomes for a number of neuromuscular conditions.
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SMC approves mexiletine hydrochloride for adults with non-dystrophic myotonic disorders
07/12/2020The news means adult patients in Scotland will be able to access mexiletine hydrochloride on the NHS if their healthcare professional thinks it is right for them.
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Muscular Dystrophy UK thanks supporters on International Volunteer Day 2020
05/12/2020Walk With Carmela is one of MDUK’s ongoing campaigns that simply would not have happened this year without the generosity of individuals and companies.
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Cambridge University Hospitals’ Trust decision on risdiplam
04/12/2020Cambridge University Hospitals’ Trust decision on risdiplam
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Tesco installs its 100th Changing Places toilet
03/12/2020The toilet was officially opened today, 3rd December, in its Watford Extra store.
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Join MDUK President Gabby Logan for a live cooking lesson
03/12/2020Gabby will cook her Sri Lankan-style monkfish curry.
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Tower of London makes history with the introduction of new Changing Places facility
03/12/2020Changing Places at the Tower of London
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SMA research project update- The potential of an existing drug to treat SMA
01/12/2020Dr Melissa Bowerman is investigating whether a commercially available drug that targets the body’s metabolism could be a potential treatment for SMA.
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Filmmaker with muscular dystrophy creates award-winning shielding documentary
01/12/2020A filmmaker who lives with a life-limiting muscle-wasting condition and hasn’t left the house in 10 months is taking the documentary world by storm with her film on shielding.