For the first time, a clinical trial will start recruiting a small number of boys in the UK to test a potential gene therapy for the treatment of DMD.Read more
TalkMD is an online community where adults living with a muscle-wasting condition can share their stories, make friends and ask others for advice.
Stephanie Castelete-Tyrrell has congenital muscular dystrophy and says gaming gives her the freedom to “complete tasks that many people take for granted in the real world".
Cambridge Town and Gown is joins forces with the TTP Cambridge Half Marathon to launch The Cambridge Festival of Running,
World Toilet Day 2020 aims to raise awareness about the 2.6 billion people worldwide who don’t have access to toilets
Dr Federica Montanaro, at the UCL Great Ormond Street Institute of Child Health, is leading an important piece of research into heart disease in Duchenne and Becker MD.
Chloe Ball-Hopkins, an ambassador for Muscular Dystrophy UK, speaks on the importance of Purple Tuesday for improving the customer experience for disabled people.
Ines, 34, explains just how supportive the helpline team can be. She said: "For the first time, someone who didn’t know me seemed to understand what I am going through."
Danielle Malkin and sons Theo and Jenson all have the condition. Danielle was only told she had Charcot-Marie-Tooth disease following Theo's diagnosis in 2004.
Update on PolarisDMD clinical trial
MDUK Muscles Matter 2020 – Thursday 22 October round-up