Muscular Dystrophy UK highlights a master craftsman to mark Rare Disease Day 2021
On this year’s Rare Disease Day, Sunday 28 February 2021, we are showcasing the achievement of master craftsman Paul Tomlin and his amazing, traditional building skills.
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MDUK Muscles Matter 2020 – Thursday 22 October round-up
23/10/2020MDUK Muscles Matter 2020 – Thursday 22 October round-up
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Covid-19: MDUK concerned over new Government shielding guidance
13/10/2020The government has released shielding guidance for people classed as clinically extremely vulnerable, a day after announcing a new, three-tiered system of Covid-19 alert levels.
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Grieving parents will run virtual Cambridge Town and Gown 10k in memory of their teenage son
13/10/2020A grieving mum and dad are running the virtual Cambridge Town and Gown 10k in memory of their teenage son who died after a heart attack aged just 15.
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MDUK Muscles Matter 2020 – Saturday 10 October round-up
10/10/2020MDUK Muscles Matter 2020 – Saturday 10 October round-up
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The Microscope Ball goes virtual
09/10/2020The Microscope Ball, a flagship event for Muscular Dystrophy UK, has been transformed into a virtual event for the first time ever – with a range of impressive prizes up for grabs.
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Classic car up for auction for MDUK
05/10/2020Rare Rover 216 saved from scrap heap for auction to raise money for MDUK
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Muscular Dystrophy UK praises collaboration between Coronation Street and The Lily Foundation
02/10/2020MDUK is praising a storyline of a child with mitochondrial disease in Coronation Street for sensitively and accurately capturing the reality of the muscle-wasting condition.
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MDUK Muscles Matter 2020 – Wednesday 30 September round-up
01/10/2020Our MDUK Muscles Matter 2020 seminars continued on Wednesday 30 September with seminars on limb girdle muscular dystrophy (LGMD) and navigating the world of employment.
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NICE to begin appraisal of SMA treatment risdiplam in autumn
25/09/2020NICE will begin its appraisal of the SMA treatment risdiplam this autumn to decide whether or not the treatment will be made available on the NHS in England.