Share your story

Telling your story is a powerful and positive way of showing what it’s like to live with a muscle-wasting condition. It helps people dealing with a new diagnosis, for example, to know more about their condition and how to live independently. And to know they are not alone.

In raising the profile of the charity, your story explains why support is so urgently needed – as well as showing what a difference it can make.

There are many ways you can share your story. Whether it’s a short quote or a full profile, named or anonymous – it’s up to you.

Would you be prepared to share your story? If this is a way you could help us, please get in touch using the form below. Thank you.

Share your story

  • Keep involved

    We'd love to share updates with you about MDUK work, opportunities to take part in events and other ways to help beat muscle-wasting conditions.

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