Share your story

Thank you so much for your interest in sharing your story with us.

Telling your story is a powerful and positive way of showing what it’s like to live with a muscle-wasting condition. It helps people dealing with a new diagnosis, for example, to know more about their condition and how to live independently. And to know they are not alone.

We use people’s stories on our website, on social media, in our materials, and in the media. It could be a short quote or a longer piece, named or anonymous. It’s entirely up to you how your story is used. And before we share it with anyone, we’ll always get in touch with you first.

In raising the profile of the charity, your story explains why support is so urgently needed – as well as showing what a difference it can make.

If you prefer, you can get in touch by emailing

Please use “Share your story” in the subject line. You can also call us on 0207 803 2887 if you would prefer to speak over the phone.

Share your story

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    We'd love to share updates with you about MDUK work, opportunities to take part in events and other ways to help beat muscle-wasting conditions.

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