Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
In addition to funding world-class research to find effective treatments and cures, we provide practical information and advice for individuals and their families. We campaign to raise awareness and bring about change, award grants towards the cost of specialist equipment, such as powered wheelchairs and provide specialist education and development for health professionals.
We need dedicated volunteers to support the regional development team to deliver a high level of care to supporters in order to continue our vital work.

What will I be doing?

As a Fundraising Representative and Speaker you will represent Muscular Dystrophy UK at events and meetings. You will be confident in speaking about the cause and the work of the charity and you will develop relationships with key supporters and individuals as part of the process. Raising awareness of who we are and what we do is very important to the charity so we are looking for a proactive volunteer who will seek out speaking opportunities and make asks on behalf of the charity to attend events where further awareness can be raised.
Specific tasks may include;

  • Researching potential new events and marketing our involvement with existing events
  • Attending events and meetings on behalf of Muscular Dystrophy UK. The events and activities the charity is invited to vary from large conferences or fundraising balls through to other fundraising activities such as supporter coffee mornings, quiz nights and cheque presentation opportunities
  • Delivering key messages about Muscular Dystrophy UK. Speaking about muscular dystrophy and the work of the charity in fighting muscle disease
  • Using all events as an opportunity to engage existing and new audiences in the work of the charity
  • Listening to supporters and members of the public at events to find out more about their charity giving and any knowledge or experience they have had with Muscular Dystrophy UK
  • Recognising opportunities to exchange contact details and develop relationships
  • Feeding back to the Regional Development Manager on events, key individuals and any actions to be followed up
  • Updating your Regional Development Manager on a regular basis

What skills and attributes do I need to have?

  • An interest in events management and volunteer led fundraising
  • Access to a computer and printer if not working in the London office
  • Excellent oral communication
  • Representing the charity is an important role and can affect subsequent fundraising and engagement with the charity so you should be confident to deliver key messages clearly and enthusiastically
  • You should be happy to be photographed for the press and able to thank donors appropriately for donations
  • Good interpersonal skills
  • Listening – you may meet people affected by muscular dystrophy or people greatly affected by what you have told them and it is important you can recognise and develop this engagement
  • Relationship building – when attending events you are the eyes and ears for your Regional Development Manager. There is great potential to develop leads and opportunities for the charity
  • You will need be adaptable to different situations and ensure you research and prepare material appropriate for your audiences
  • Flexible to attend events at irregular dates and times throughout the year
  • Reporting and evaluation skills
  • Enthusiasm for the cause and determination to make events a success
  • The ability to work well with staff and other volunteers as part of a team but also on your own initiative
  • A commitment to and an understanding of disability issues, equal opportunities and diversity.
  • A willingness to travel


What benefits can I expect?

  • The satisfaction of knowing you are making a valuable contribution to Muscular Dystrophy UK and to supporting our vital work
  • The enjoyment of meeting new people in your community and working as part of our skilled and friendly fundraising team
  • The opportunity to develop new and existing skills in fundraising, marketing and communication
  • The chance to gain experience of working within a leading charity
  • You will receive a full induction and further information about Muscular Dystrophy UK
  • Training on Raisers Edge data base
  • Your volunteer manager will work with you to identify your development goals through monthly 1:1’s and help you work to achieve these
  • Travel and expenses reimbursed if volunteering for a full working day or more

Where will I be based?

The majority of our volunteers are based in our head office in London which gives volunteers a good insight into a working charity. However if you do not live in London we can organise for you to work from home with regular telephone calls from your regional contact. This would entail you have the use of your own computer and access to email. Reasonable travel expenses will be paid when incurred on charity business.

How much time do I need to commit?

We are looking for someone to commit to volunteering for a minimum of one day a week. However, there may be opportunities for you to give more/less time.

What support will I be given?

A dedicated member of staff will guide and support you in your work plus you will receive supporting materials, a full induction to the charity and specific training, where appropriate, to help you get the most from your role.

How do I apply?

If you would like more information please email us or call the fundraising hotline on 0845 872 9058. To apply please complete online application form.

Keep in touch