Local services
NHS neuromuscular service
Wessex Neuromuscular Service
The Wessex Regional Muscle and Nerve service (WERMANS) provides a comprehensive specialist service for neuromuscular disorders for the population of Hampshire…
NHS neuromuscular service
Oxford Neuromuscular Service
The neuromuscular service at John Radcliffe Hospital is recognised by Muscular Dystrophy UK as a Centre for Research and Clinical Excellence. The neuromuscular…
NHS neuromuscular service
Alder Hey Children’s Hospital Neuromuscular Service
The Alder Hey Children’s Hospital is recognised as a Paediatric Centre of Clinical Excellence by Muscular Dystrophy UK. The Neuromuscular Service is provided…
NHS neuromuscular service
Derby Neuromuscular Service
The neuromuscular service in Derby is for adults and children across southern Derbyshire, it is made up of a multi-disciplinary team that provides specialist…
NHS neuromuscular service
The John Walton Muscular Dystrophy Research Centre
Newcastle has long been a world leader in the treatment and management of muscle diseases. The John Walton Muscular Dystrophy Research Centre is part of the…
NHS neuromuscular service
The Walton Centre NHS Foundation Trust
The Walton Centre offers a comprehensive diagnostic, therapeutic and support service for adult patients in the North West of England with neuromuscular…
NHS neuromuscular service
Dubowitz Neuromuscular Centre
The Dubowitz Neuromuscular Centre (DNC) based at Great Ormond Street Hospital for Children is a clinical and research centre specialising in neuromuscular…
NHS neuromuscular service
Sheffield Teaching Hospitals NHS Foundation Trust
The Sheffield Neuromuscular service is a Muscular Dystrophy UK Centre of Excellence and provides care and support to adults affected by muscle and nerve…
NHS neuromuscular service
Leeds Children’s Hospital NHS Trust
The Leeds Children’s Hospital is recognised by Muscular Dystrophy UK as a Paediatric Centre of Clinical Excellence. The Paediatric Neuromuscular Disease Unit…
NHS neuromuscular service
Bradford Teaching Hospitals NHS Foundation Trust
The Bradford Teaching Hospitals neuromuscular service includes clinics for adults in Leeds and Bradford as well as transition clinics run in conjunction with…
NHS neuromuscular service
Swansea Morriston Hospital
Swansea Morriston Hospital has a neuromuscular service for children and adults. Its service includes an adult clinic, respiratory clinics, general paediatric…
NHS neuromuscular service
University Hospital of Wales
The University Hospital of Wales provides a neuromuscular service for both children and adults, including paediatric and adult clinics as well as transition…
NHS neuromuscular service
Sheffield Children’s NHS Foundation Trust
Sheffield Children’s NHS Foundation Trust provides integrated healthcare for children and young people across our acute and community sites.
NHS neuromuscular service
Royal Manchester Children’s Hospital
The Royal Manchester Children’s Hospital provides a comprehensive specialist service for neuromuscular disorders for children and young people throughout the…
NHS neuromuscular service
Queen Square Neuromuscular Clinic
The Queen Square Centre for Neuromuscular Diseases is a research and clinical centre which specifically focuses on genetic and acquired neuromuscular diseases…
NHS neuromuscular service
Evelina Children’s Hospital
The Evelina children’s neuromuscular service based in the Evelina London Children’s Hospital assesses and cares for children with neuromuscular conditions such…
NHS neuromuscular service
Royal Free Neuromuscular Clinic NHS
The Royal Free Neuromuscular Centre based at the Royal Free Hospital London is a neuromuscular service which offers clinical service and research into…
NHS neuromuscular service
King’s College Hospital
King’s College neuromuscular department is based within King’s College Hospital London. The department diagnoses, treats and manages neuromuscular disorders…
NHS neuromuscular service
Barts Health
The Barts Health NHS Trust service provides neuromuscular clinics at the Royal London Hospital in Whitechapel and at St Bartholomew’s Hospital, West Smithfield.
NHS neuromuscular service
Lane Fox Respiratory Unit
The Lane Fox Respiratory Unit, based at St Thomas’ Hospital in London, provides a comprehensive multidisciplinary service (respiratory, cardiology, neurology,…
NHS neuromuscular service
St George’s University Hospitals – The Atkinson Morley Neuromuscular Centre
The Atkinson Morley Neuromuscular Centre provides specialist multi-disciplinary care for adults living with Neuromuscular conditions in Southwest London,…
NHS neuromuscular service
North Wales (BCUHB) Neuromuscular Service
The North Wales neuromuscular service is provided by the Betsi Cadwaladr University Health Board and is located in various hospitals and clinics in the region.
NHS neuromuscular service
Bristol Neuromuscular Services
The paediatric and adult services in Bristol are within the South West Neuromuscular Operational Delivery Network (ODN) which is a specialist clinical and…
NHS neuromuscular service
Plymouth Neuromuscular Service
The paediatric and adult services in Plymouth are within the South West Neuromuscular Operational Delivery Network (ODN) which is a specialist clinical and…
NHS neuromuscular service
West Midlands Rehabilitation Centre
The West Midlands Rehabilitation Centre (WMRC) offers a multi-disciplinary rehabilitation clinic for adults from across the West Midlands, the clinic provides…
NHS neuromuscular service
Oswestry Inherited Neuromuscular Diseases Service
The Oswestry Inherited Neuromuscular Service is located at The Robert Jones and Agnes Hunt Orthopaedic Hospital. The neuromuscular service aims to provide a…
NHS neuromuscular service
Norfolk and Norwich University Hospital
Norfolk and Norwich University Hospital provides a neuromuscular service for both children and adults with neuromuscular conditions. The Norfolk and Norwich…
NHS neuromuscular service
Salford Royal NHS Foundation Trust
The Muscle Disease Unit at the Manchester Centre for Clinical Neuroscience provides a tertiary muscle service for people in Greater Manchester, and from…
NHS neuromuscular service
Lancashire Teaching Hospitals Neuromuscular Service
The paediatric neurology service at Lancashire Teaching Hospitals provides neuromuscular services for the Lancashire and South Cumbria region. There are…
NHS neuromuscular service
The Colman Centre
The Colman Centre for Specialist Rehabilitation Services provides multi-disciplinary neuromuscular clinics for adults and young people from the age of 16.
NHS neuromuscular service
West of Scotland Paediatric Neuromuscular Service
The neuromuscular service for the west of Scotland is based at Yorkhill, The Royal Hospital for Children.
NHS neuromuscular service
West of Scotland Adult Neuromuscular Service
The muscle service in NHS Greater Glasgow and Clyde addresses diagnosis, genetic advice and management and treatment issues and is based at the Queen Elizabeth…
NHS neuromuscular service
East of Scotland Paediatric Neuromuscular Service
The East of Scotland Paediatric neuromuscular service is supported by the Scottish Muscle Network. The Scottish Muscle Network (SMN) is a national managed…
NHS neuromuscular service
East of Scotland Adult Neuromuscular Service
The Department of Clinical Neuroscience – which includes both neurology and neurosurgery – is currently sited at the Western General Hospital in Edinburgh. The…
NHS neuromuscular service
North of Scotland Paediatric Neuromuscular Service
The Combined Child Health Service provides acute and community child health services across Grampian and to some children from Tayside, Highland, Orkney and…
NHS neuromuscular service
North of Scotland Adult Neuromuscular Service
The Clinical Neurophysiology service is based in the Neurology Unit at Ward 205, Aberdeen Royal Infirmary. They provide a range of specialist diagnostic tests…
NHS neuromuscular service
University Hospitals of Leicester NHS Trust
The Leicester neuromuscular service supports both adults and children in the region.
NHS neuromuscular service
The Neuromuscular Centre Winsford
The Neuromuscular Centre (NMC) Winsford in Cheshire is a charity that provides a range of unique services and specialist advice for people with Muscular…
NHS neuromuscular service
Muscular Dystrophy Support Centre
Muscular Dystrophy Support Centre (‘MDSC’ or ‘the Centre’) is an independent charity on a mission to transform access to therapies for people living with…
NHS neuromuscular service
Nottingham University Hospitals NHS Trust
Nottingham University Hospitals NHS Trust provides an adult and paediatric neuromuscular service for patients across the East Midlands.
NHS neuromuscular service
Pennine Care NHS Foundation Trust
In 2014 Pennine Care NHS Foundation Trust appointed a neuromuscular care advisor and specialist respiratory physiotherapist to support young adults living in…
NHS neuromuscular service
University Hospital of North Midlands
The Respiratory Team at the University Hospital of North Midlands provide specialist assessment and clinical support for the breathing and nutritional needs of…
NHS neuromuscular service
Queen Elizabeth Hospital, Birmingham
In addition to their general neurological and neurosurgical services, the department provides 24-hour emergency care and, as QEHB is a major trauma centre, the…
NHS neuromuscular service
Birmingham Children’s Hospital NHS Foundation Trust
Birmingham Children’s Hospital is a fundraising hospital, meaning that charitable donations are key to making them what they are: a centre of paediatric…
NHS neuromuscular service
Addenbrooke’s Hospital Cambridge
Addenbrooke’s neuromuscular service provides a comprehensive specialist service for neuromuscular disorders for adults and children throughout the East of…
NHS neuromuscular service
West Suffolk Hospital
The West Suffolk Hospital in Bury St Edmunds holds neuromuscular clinics for both adults and children. The Neurology Department at the West Suffolk Hospital…
NHS neuromuscular service
Specialist muscle clinics Belfast City Hospital
The Neuromuscular Service for adults and children in Belfast is led by Dr John McConville and Dr Sandya Tirupathi. Currently the muscle clinic for both…
NHS neuromuscular service
Dorset Neuromuscular Service
The Dorset Neuromuscular Service is affiliated to the Wessex Regional Muscle and Nerve Service. Patients are initially seen by specialist consultants in…
NHS neuromuscular service
Newcastle Upon-Tyne Hospitals – Royal Victoria Infirmary
The Royal Victoria Infirmary is part of the Newcastle University Teaching Hospitals NHS Foundation Trust. It’s neuromuscular service offers specialist…
NHS neuromuscular service
The Neuromuscular Complex Care Centre
The Neuromuscular Complex Care Centre (NMCCC) is located at the National Hospital for Neurology and Neurosurgery and has been set up to make access to health…
NHS neuromuscular service
Walter Brice Centre
The Walter Brice Rehabilitation Centre can provide day rehabilitation to adults that have physical disabilities and problems and who are registered with a…
NHS neuromuscular service
Royal Brompton Respiratory Unit
The respiratory support service at Royal Brompton Hospital provides a national service for the assessment of sleep and ventilation problems and provision of…
Support groups
East Midlands Muscle Group
Come along to the East Midlands Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
East of England Muscle Group
Come along to the East of England Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or…
Support groups
London Muscle Group
Come along to the London Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
North East Muscle Group
Come along to the North East Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
North West Muscle Group
Come along to the North West Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
Northern Ireland Muscle Group
Come along to the Northern Ireland Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy…
Support groups
Scotland Muscle Group
Come along to the Scotland Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
South Central Muscle Group
Come along to a Muscle Group meeting near you. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or…
Support groups
South East Coast Muscle Group
Come along to the South East Coast Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy…
Support groups
South West Muscle Group
Come along to the South West Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
Wales Muscle Group
Come along to the Wales Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a related…
Support groups
West Midlands Muscle Group
Come along to the West Midlands Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular dystrophy or a…
Support groups
Yorkshire and Humber Muscle Group
Come along to the Yorkshire and Humber Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by muscular…
Support groups
Awaaz
In 2014, Muscular Dystrophy UK and Leeds General Infirmary developed the Yorkshire Neuromuscular Awaaz Forum, a new group for Yorkshire families affected by…
NHS neuromuscular service
Colwyn Bay Hospital
To find out more about neuromuscular services at Colwyn Bay Hospital, please contact them directly.
NHS neuromuscular service
Hull neuromuscular service
Paediatric neuromuscular services in Hull are lead by Dr Ann-Marie Childs and adult neuromuscular services by Dr Nandakumar.
Support groups
Hampshire, Dorset and Isle of Wight Muscle Group
Come along to the Hampshire, Dorset and Isle of Wight Muscle Group. It is a fantastic opportunity to meet people and their families in the region affected by…
National services
Information and advice
Our helpline
The friendly care and support staff in our London office are here to give you free information and emotional support. They are great listeners. Even though…
One-to-one support
Peer support
Our peer support volunteers understand what you are going through, no matter how rare the condition. Our peer support volunteers all have a personal experience…
Support groups
Duchenne Family Support Group (DFSG)
The Duchenne Family Support Group (DFSG) was set up in 1987 to provide support for families with children diagnosed with Duchenne muscular dystrophy.
Support groups
Oculopharyngeal Muscular Dystrophy Support Group
Muscular Dystrophy UK has set up a new informal support group for people affected by oculopharyngeal muscular dystrophy (OPMD). Members are in touch with each…
NHS neuromuscular service
Care advisors
Regional neuromuscular care advisors and specialist nurses provide practical and emotional support for families affected by muscular dystrophy and related…
Changing places toilet
Changing places toilets
Many people don’t give visiting public buildings a second thought. However, some disabled people are unable to go out or take part in activities many take for…
Support groups
Online community
If you’re looking for somewhere to get advice, share your experiences or just talk to other people living with a muscle-wasting condition, then TalkMD is the…