In light of the COVID-19 pandemic and the impact on all charities and their ability to raise funds, exacerbated by the current lack of government support for charities, we are having to furlough many members of MDUK staff. This includes the team responsible for administering the Joseph Patrick Trust (JPT). We will re-open the JPT for applications later in the year and will update you when we have more clarity around when this is likely to be.
You can read more from our CEO about the impact that COVID-19 is having on MDUK and how we have had to respond in this blog.
If you need to contact us about a JPT grant that has already been awarded please email firstname.lastname@example.org.
Over more than 30 years, MDUK has funded more than £6m in grants that have helped more than 5,000 children and adults with muscle-wasting conditions buy specialist mobility equipment not available on the NHS.
All applications are reviewed by the Joseph Patrick Trust Grants Panel. The Panel meets four times a year to make awards, and oversee the Trust’s budget and spending.
The Panel is made up of service users, parents and professionals from around the UK who volunteer their services.
If you can spare a few days a year and would like to serve on the panel, you can now find the full role description and application form online here.
David Jackson – Chairman
David says that he is both proud and privileged to have been associated with Muscular Dystrophy UK for over 50 years in particular the Joseph Patrick Trust serving in recent years as the Chairman of the Trusts Grants Making Panel. He was awarded the MBE in 2009 for services to Muscular Dystrophy.
David is always heartened each time that the Panel hears from the recipient of a grant and delighted that the Trust has been able to make such a difference to their lives and pleased that the effect that the trust extends to the much wider field of Parents, Carers, relatives and friends who benefit from the provision of various items of equipment such as electric beds, riser chairs, car adaptations and assistive technology equipment.
But David is far from complacent: “The number of grants to people with neuromuscular conditions continues to increase year by year thus reflecting the continual need for our work.”
Julian is a former trustee of Muscular Dystrophy, serving on the Finance and General Purposes Committee. Julian has been on the JPT Committee since 2012 and is proud to be part of the Committee created in memory of his grandfather, Joseph Patrick.
Day to day life centres around commercial property, with Julian running two such businesses based in the Midlands. Julian is also actively involved with various other charitable organisations.
Kirsty has been a panel member since 2004. She has spinal muscular atrophy type 2 and so is very familiar with many of the challenges faced by children and adults who have muscle disease.
Jane joined the panel in 2005. She is the mother of Murray who has Duchenne muscular dystrophy, and Finella.
She qualified as an osteopath in 1980 and since 1981 has run her own practice in Worcestershire. Jane has worked with the British Olympic Junior Judo squad and lectured in diagnosis and clinical skills at the British School of Osteopathy. She is a professional classical soprano and has been a member of the Duo Dolcetini a pure soprano duo since 1990, using concerts to raise money for the charity.
Karen joined the panel in 2011. She is a manifesting carrier of Duchenne muscular dystrophy and has been a permanent wheelchair user for the past 13 years. Karen also has two nephews with Duchenne muscular dystrophy.
Karen has an OU LLB Law degree and, although she has not been able to go into a legal profession, she works at her local Citizens Advice Bureau, both as a paid advice session supervisor and a voluntary advisor.
Knowing the struggles that people with neuromuscular conditions have to go through first hand, she joined the panel in the hopes she could make grants towards items of equipment that would help make the lives of other affected by these conditions a little easier.
Patricia joined the JPT panel in 2011. Patricia became involved with Muscular Dystrophy UK when she moved to the UK in 2003, and joined the JPT committee in August 2011. Her experience of living with muscular dystrophy means that Patricia has a good understanding of what applicants might be going through and what their needs are, she also has first-hand experience with various types of equipment and adaptions.
Patricia says that it’s good to be doing something positive to help so many people living with muscular dystrophy and related conditions, and appreciates the fact that JPT is for the whole country, meaning that many people can benefit from equipment grants.
Jane joined the JPT panel in 2016.
James joined the JPT panel in 2017. James previously worked for MDUK as part of the Trailblazers team. He currently works as a consultant for a range of public, private and charitable organisations.
James has spinal muscular atrophy: this lived experience helps him to better understand the value of the Joseph Patrick Trust’s support for people living with Muscular Dystrophy. James has a keen interest in technology and the wonderful potential it has to enable independence.
Robbie joined the JPT panel in 2017.