Living with a muscle-wasting condition in 2020 and beyond: MDUK Muscles Matter 2020 online seminar series

This August to October, we’re hosting a series of online seminars covering a diverse range of topics and to mark condition awareness days, weeks and months.

Usually we would all get together at our National Conference, but sadly we cannot do that this year. Instead, we are hosting a series of online seminars to give you the latest condition-specific research updates, and advice and support on practical issues.

Headline sponsor: PTC Therapeutics


Additional sponsor: Sarepta Therapeutics


In these online seminars we’ll be exploring what it is like to live with a muscle-wasting condition in these unprecedented times, and we’ll look more broadly at how both neuromuscular specialist services and society can look in a world with coronavirus. We’ll be looking at a range of topics suitable for people living with muscle-wasting conditions, which you can find below. 

Take a look at the full list below, and click the booking link to get your free place. Please note there are limited spaces to take part in the Zoom webinar itself but they will be available to watch online on our website and our YouTube channel shortly afterwards.

Condition-specific seminars

Spinal muscular atrophy: Tuesday 25 August > watch the seminar recording

Duchenne muscular dystrophy: Wednesday 9 September, 4 – 5.35pm  > watch the seminar recording

Mitochondrial disease: Monday 14 September, 1 – 2.35pm > watch the seminar recording

Limb girdle muscular dystrophy: Wednesday 30 September, 10 – 11.35am > watch the seminar recording

Becker muscular dystrophy: Saturday 10 Oct, 10 – 11.35am > watch the BMD seminar

Charcot-Marie-Tooth: Thursday 22 October, 4 – 5.35pm > watch the CMT seminar


Practical issue seminars

Living in a world with COVID-19: Tuesday 25 August > watch the seminar recording

Assistive technology: Wednesday 9 September, 6 – 7.10pm > watch the seminar recording

Managing education; overcoming challenges for children, parents and teachers: Monday 14 September, 4.30 – 5.40pm > watch the seminar recording

Navigating the world of employment: Wednesday 30 September, 12 – 1.10pm > watch the seminar recording

Accessing financial support: Saturday 10 Oct, 12 – 1.10pm > watch financial support seminar

Accessing services in the world of COVID-19: Thursday 22 October, 6 – 7.10pm > watch the services seminar


We hope to see you at one of our sessions. Places are limited so make sure to book early.

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